Table S1. Available literature regarding experiences with anonymous living liver donors.
Case Reports
Authors Year Institution/country Study type
n Age Gender
(n)
Donated hemiliver
Recipient age group/age
Recipient gender
Reason to donate/
Narratives
Comment
Jean- Bernard Otte
14
2009 Universit Catholique de Louvain, Cliniques
Saint-Luc, Brussels, Belgium
Case report
1 50 M LLS 12-year-old M Motivated to
donate after the death of a close relative on the bone marrow.
Describe in depth the process for approval at
their institution Ethics Committee.
Patel M et al.
24
2020 University Health Network, Toronto,
Canada
Case report
1 37 F RL 53-year-old M The authors report the
first case in North America of a paired organ exchange, made
possible by an anonymous donor.
Wright et al.
6
2007 University Health Network, Toronto,
Canada
Case report
1 46 M LLS 10-year-old “Would donate
again in a heartbeat”.
First case of living anonymous liver donation at their
institution.
Reichman et al. 15
2010 University Health Network, Toronto,
Canada
Case report
12 20-54 F (6) M (6)
LLS (5) RL (7)
Pediatric recipients (n=5,
41%), Adult
"Wanted to contribute to the
well-being of
Preliminary report of University of Toronto
ALLD program
recipients (n=7, 58%)
others and do something
‘meaningful’ and
‘life-saving’"
Goldaracena et al. 3
2018 University Health Network, Toronto,
Canada
Case series and
program evaluation
50 20-59 F (26) RL (21), LL (5), LLS (24)
Pediatric recipients (n=28, 56%).
Adult recipients (n=22, 44%)
M (30),
F (20)
‘‘It’s the most important thing
that I’ve done with my life so
far”.
Largest report to date of anonymous liver living donors surgical
and outcomes
Survey
Bramstedt K. 18
2018 University Drive, Gold Coast, Queensland, Australia
Survey 2 55,63 M (2) - - “[Donation] is the
best thing I have ever done. I would do it again
in a heartbeat!”
Long-term follow-up on the health and quality
of life of Good Samaritan living organ donors. 13 donors total participate in the study (10 kidneys, 2 livers, 1
lung) Krause S. et
al 25
2020 University Health Network, Toronto,
Canada
Survey 30 17-54 F (14) M (12)
- - “Nobody warned
me about how in love with this scar I’d be, you know. Like, it’s all
I have, really,
The study, as well as Dr. Goldaracena et al (3) study drew data from the same set of interviews with ALLD, however, there was no
because it’s anonymous. […]”
overlap in the themes among studies.
Ghent 17 2019 Hospital for Sick Children (SickKids) in
Toronto, Ontario,Canada
Phenome nological research
8 6
months- 17
years
Not provided
- - Opinion of
recipient's caregiver: “This donor is my son's
second parent, mother, or father…the donor
saved my child, without [their]
liver, my son wouldn't be here
today.”
Survey was for the recipient's family and
caregivers, 10 participants were included (5 mothers, 4 fathers, 1 grandparent)
Other
Jendrisak et al. 12
2006 Washington University School
of Medicine, St.
Louis, Missouri.
USA
Program evaluation
1 35 M LLS 11 months old F Program evaluation for
anonymous kidney and liver donors.
