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IDENTIFYING AND PRIORITISING RURAL HEALTH CARE ISSUES –

INVOLVING CONSUMERS, HEALTH PROFESSIONALS AND RESEARCHERS

A/Prof A Wong Shee1,2, Dr R Clapham1, 2, Dr J Aitken3, Dr A Donaldson4, J Ananthapavan2, A/Prof K McNamara2, Dr A Ugalde2, A/Prof V Versace2 1.Ballarat Health Services 2.Deakin University 3.Rural Northwest Health, 4.La Trobe University

This study was funded by the Western Alliance Academic Health Science Centre

(2)

BACKGROUND

Health inequities exist for people living in rural areas and

research needs to meet their needs

There is a gap between health research and rural health

practice

A mismatch exists between academic research and the

needs and priorities of communities and clinicians

Limited communities and clinician involvement in health

research decision-making

(3)

AIM

To identify and prioritise health issues in the Grampians region, Victoria, from the perspective of community members,

health professionals and researchers

(4)

Identify local health issues

Surveys and community forums with community members and health professionals

Identify values for prioritising health issues

Focus groups with community members and health professionals

PHASE 1

PHASE 2

PHASE 3

Sorting and ranking health issues

Modified Delphi with community members, health professionals and academic researchers

Dissemination

Share findings with key stakeholders and decision-makers

(5)

IDENTIFYING LOCAL HEALTH ISSUES

What do you think are the key health and health care issues in your community that need to be addressed?

• 187 survey respondents 117 community members, 70 health professionals

74% and 83% female, respectively, 1% identified as indigenous, 18 to 60+ years

• Three rural community forums

• 400 health issue statements collected

→ 72 unique statements

Note: Consent was obtained for taking photographs and their use in presentations

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PRIORITISING HEALTH ISSUES

Who should be involved in priority setting?

Limited involvement of community members and health professionals

How should these decisions be made?

Implicit vs explicit

What criteria should be used?

Recognition of need for judgement

(7)

IDENTIFYING VALUES FOR PRIORITISING HEALTH ISSUES

Health equity (equal access for

equal need )

Health burden (number of people

affected)

Capacity to address (capacity to implement an

effective intervention) Focus groups - 3 community (n=16), 3 health professional (n=16)

Scenario – limited amount of money and three health issues Choose the most important issue

Explain why it was important

Explain why it was more important to address than another issue

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Identify local health issues

Surveys and community forums involving community members and health professionals

Identify values for prioritising health issues

Focus groups involving community members and health professionals

PHASE 1

PHASE 2

PHASE 3

Sort and rank health issues

Modified Delphi involving community members, health professionals and academic researchers

Dissemination

Share findings with key stakeholders and decision-makers

(9)

SORTING AND RANKING ISSUES

Modified Delphi¹ (2 rounds)

48 participants sorted the 72 unique statements into groups of similar issues (17 community members, 19 health professionals, 12 researchers)

42 participants used five-point scales (1 = least, 5 = most) to rate each statement for the three priority-setting criteria

1. Okoli, C., & Pawlowski, S. (2004). The Delphi method as a research tool: an example, design considerations and applications. Information and management, 42(1), 15-29.

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SORTING AND RANKING ISSUES

Concept mapping²

• Point map - individual statements in two-dimensional (x, y) space with more similar statements located nearer each other

• Cluster map - multidimensional scaling and hierarchical cluster analysis used to group sorted statements into clusters

• Go zones - mean ranking values of statements for the priority-setting criteria used to generate four-quadrant ‘go-zone’ graphs

2. Trochim, W., & McLinden, D. (2017). Introduction to a special issue on concept mapping. Evaluation and Program Planning, 60, 166-175.

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POINT MAP

Local hospitals do not birth babies

Specialist services are limited

High suicide rates in the region

(12)

POINT MAP

(13)

CLUSTER MAP

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Cluster Example health issue (statement number) Capacity1 Equity2 Burden3 Transport and Technology Technology-based interventions are hard to apply to the

community where people don't have internet (1) 3.51 3.74 3.43 Social determinants of health Health messages are heard and understood but cannot

always be acted upon due to financial pressures (12) 3.51 3.84 3.52

Social issues High incidence of family violence in the region (55) 3.60 3.77 3.52

Cancer and respiratory health High rates of smoking in the region (27) 3.60 3.77 3.52 Health behaviours People delay getting tested for cancer symptoms (18) 3.55 3.53 3.23 Cost of health care People in some rural areas have to pay for emergency care

(20) 3.28 3.53 3.12

Availability of essential services Lack of resources for chronic disease management (26) 3.65 3.67 3.63 Quality & capacity of health services Lack of and poor coordination of support services in the

community (67) 3.79 3.74 3.40

Mental health Poor discharge planning and follow up for mental health

(21) 3.96 3.86 3.48

CLUSTERS WITH MEAN VALUE RATINGS

1. How much can be done about this issue in the Grampians region? 2. How much would addressing this issue ensure those with equal health need have equal access to care? 3. How many people in the Grampians region does this issue impact?

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GO-ZONE GRAPH

Capacity to address (n=47) Equity

(n=43)

Mental health services are fragmented

Poor discharge planning and follow up for mental health

Expensive and at times unreasonable cost of healthcare

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SUMMARY

Local health issues were identified and prioritised by

community members, health professionals and academic researchers

Priority setting criteria were created based on community and health professional values

NEXT STEPS

Share results with consumers and health professionals

Present results to health service executive and management Work with academic researchers to address evidence gaps for identified health priorities

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Thank you

Anna Wong Shee

[email protected]

Acknowledgements: Thank you to all the community members, health professionals and researchers who have contributed to this project.

This study was funded by the Western Alliance Academic Health Science Centre https://www.westernalliance.org.au/

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