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Family caregiver involvement in home based palliative care for cancer patients in Indonesia A finding from an ethnographic study

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(1)

www.worldcancercongress.org

Disclosure of Interest: None Declared Track

RF.4

Family caregiver involvement in home

based palliative care for cancer

patients in Indonesia

A finding from an ethnographic study

Erna Rochmawati

(2)

Background, aim, research methods

• Family caregiver involvement in patient care is a pivotal feature of health care systems worldwide

• Active family engagement in the patient’s care in times of illness is expected in the Indonesian culture.

• Little is known of the level and type of care being provided by family in palliative care, including home based care.

Background

•

 

To explore the involvement of family caregiver in

home-based palliative care for cancer patients in an

Indonesian palliative care facility

Aim

•

 

Contemporary ethnography

•

 

Observations

•

 

Informal interviews

(3)

Results

- Cultural family ties

Type of care

- Health management

- Personal care

- Spiritual care

Level of care

- Single handed

- Shared with others

(family, paid carer)

Impacts

- Physical exhaustion

- Employment

- Finance

- Communication issues

Supports

- Health care

professionals

- Extended family

Referensi

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