Appendix 2 Coinvestigators

Appendix 2 Coinvestigators

Name Location Role Contribution

Susan Walters Western Australian Neuroscience Research Institute, Nedlands WA 6009 Australia

Study co- ordinator

Data collection

Dave Hathorn Western Australian Neuroscience Research Institute, Nedlands WA 6009 Australia

Physiothera pist

Data collection

Sam Salman Western Australian Neuroscience Research Institute, Nedlands WA 6009 Australia

Other Data collection

Melanie Burk Royal North Shore Hospital, St Leonards, NSW 2065, Australia

Nurse Data collection and review/revision of the manuscript Ruby Chen Royal North Shore Hospital, St

Leonards, NSW 2065, Australia

Laboratory processing and send- away staff

Data collection

Mary Jenkins Royal North Shore Hospital, St Leonards, NSW 2065, Australia

Nurse Data collection and review/revision of the manuscript Carolyn Sue Royal North Shore Hospital, St

Leonards, NSW 2065, Australia

Sub

Investigator

Data collection Susan Mathers Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Sub

Investigator

Data collection Ruth Krasniqi Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Nurse Data collection Lisa Mottram Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Other Data collection Katie

Fitzgerald

Calvary Health Care Bethlehem, Caulfield, VIC 3162, Australia

Other Data collection James Howe Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Sub

Investigator

Data collection Hanne Files Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Other Data collection Ruby Chen Calvary Health Care Bethlehem,

Caulfield, VIC 3162, Australia

Other Data collection Linda

Wagemaekers

U.Z. Antwerpen, Edegem 2650, Belgium Nurse Data collection Peter De

Jonghe

U.Z. Antwerpen, Edegem 2650, Belgium Sub

Investigator

Data collection Delphine

Mahieu

U.Z. Antwerpen, Edegem 2650, Belgium Nurse Data collection

Tom Heremans

U.Z. Antwerpen, Edegem 2650, Belgium Others Data collection Kathy de

Koning

AZ Sint-Lucas vzw, Ghent 9000, Belgium Nurse Data collection Katrien De

Mey

AZ Sint-Lucas vzw, Ghent 9000, Belgium Nurse Data collection Stefanie

Cardoen

AZ Sint-Lucas vzw, Ghent 9000, Belgium Sub

Investigator

Data collection Chantal

Miclotte

Cliniques Universitaires Saint-Luc, Bruxelles 1200, Belgium

Nurse Data collection Marie-Odile

Bioul

Cliniques Universitaires Saint-Luc, Bruxelles 1200, Belgium

Nurse Data collection Anne Mette

Autzen

Rigshospitalet, Copenhagen 2100, Denmark

Nurse Data collection Julia Rebecka

Dahlqvist

Rigshospitalet, Copenhagen 2100, Denmark

Sub

Investigator

Data collection Martin Jorsal Rigshospitalet, Copenhagen 2100,

Denmark

Physiothera pist

Data collection Nanna Witting Rigshospitalet, Copenhagen 2100,

Denmark

Sub

Investigator

Data collection Jane Pedersen Rigshospitalet, Copenhagen 2100,

Denmark

Nurse Data collection Kirsten Knak Rigshospitalet, Copenhagen 2100,

Denmark

Physiothera pist

Data collection Linda

Andersen

Rigshospitalet, Copenhagen 2100, Denmark

Physiothera pist

Data collection Maj-Brit

Tanderup Joergensen

Rigshospitalet, Copenhagen 2100, Denmark

Nurse Data collection

Jean yves Hogrel

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Laurent

Gilardin

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Gwenn Ollivier Hôpital Pitié Salpêtrière, Paris 75013,

France

Sub

Investigator

Data collection Nicolas

Champtiaux

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Valérie

Decostre

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Aude Rigolet Hôpital Pitié Salpêtrière, Paris 75013,

France

Sub

Investigator

Data collection Charlotte

Lilien

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Yves

Allenbach

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection

Anne Simon Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Damien

Bachasson

Hôpital Pitié Salpêtrière, Paris 75013, France

Sub

Investigator

Data collection Chiara De Fino Fondazione Policlinico Universitario

Agostino Gemelli, Università Cattolica del Sacro Cuore, Rome RM 00168, Italy

Sub

Investigator

Data collection

Matteo Lucchini

Fondazione Policlinico Universitario Agostino Gemelli, Università Cattolica del Sacro Cuore, Rome RM 00168, Italy

Sub

Investigator

Data collection

Assunta Bianco

Fondazione Policlinico Universitario Agostino Gemelli, Università Cattolica del Sacro Cuore, Rome RM 00168, Italy

Sub

Investigator

Data collection

Francesco Losavio

Fondazione Policlinico Universitario Agostino Gemelli, Università Cattolica del Sacro Cuore, Rome RM 00168, Italy

Sub

Investigator

Data collection

Luca Bello Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Sub

Investigator

Data collection

Ilaria Martinelli

Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Sub

Investigator

Data collection

Claudio Semplicini

Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Sub

Investigator

Data collection

Alessandra Gaiani

Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Sub

Investigator

Data collection

Marta Ballabio Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Other Data collection

Alessandra Gaiani

Azienda Ospedaliera di Padova Università degli Studi, Padova 35128, Italy

Sub

Investigator

Data collection

Chiara Bussolino

Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan 20133, Italy

Others Data collection Angela

Campanella

Fondazione IRCCS Istituto Neurologico Carlo Besta, Milan 20133, Italy

Nurse Data collection Maria Pasanisi Fondazione IRCCS Istituto Neurologico

Carlo Besta, Milan 20133, Italy

Sub

Investigator

Data collection Simona

Portaro

Azienda Ospedaliera Universitaria Policlinico G. Martino, Università degli Studi di Messina, Messina 98100, Italy

Sub

Investigator

Data collection

Filippo Cavallaro

Azienda Ospedaliera Universitaria Policlinico G. Martino, Università degli Studi di Messina, Messina 98100, Italy

Others Data collection

Fiammetta Biasini

Azienda Ospedaliera Universitaria Policlinico G. Martino, Università degli Studi di Messina, Messina 98100, Italy

Sub

Investigator

Data collection

Daniela Parisi Azienda Ospedaliera Universitaria Policlinico G. Martino, Università degli Studi di Messina, Messina 98100, Italy

Sub

Investigator

Data collection

Alice Todeschini

Azienda Ospedaliera Spedali Civili di Brescia Università degli Studi Brescia, Brescia 25123, Italy

Sub

Investigator

Data collection

Irene Volonghi Azienda Ospedaliera Spedali Civili di Brescia Università degli Studi Brescia, Brescia 25123, Italy

Sub

Investigator

Data collection

Silvia Rota Azienda Ospedaliera Spedali Civili di Brescia Università degli Studi Brescia, Brescia 25123, Italy

Sub

Investigator

Data collection

Simona Damioli

Azienda Ospedaliera Spedali Civili di Brescia Università degli Studi Brescia, Brescia 25123, Italy

Sub

Investigator

Data collection

Hiroya Ono Tohoku University Hospital, Sendai, Miyagi 980-8574, Japan

Sub

Investigator

Data collection Tomomi Shijo Tohoku University Hospital, Sendai,

Miyagi 980-8574, Japan

Sub

Investigator

Data collection Rumiko Izumi Tohoku University Hospital, Sendai,

Miyagi 980-8574, Japan

Sub

Investigator

Data collection Tetsuya

Akiyama

Tohoku University Hospital, Sendai, Miyagi 980-8574, Japan

Sub

Investigator

Data collection Kensuke Ikeda Tohoku University Hospital, Sendai,

Miyagi 980-8574, Japan

Sub

Investigator

Data collection Noritaka

Wakasugi

National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Neurologist Data collection

Tomoya Kawazoe

National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Neurologist Data collection

Asami Tasaki National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Neurologist Data collection

Miho Murata National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Neurologist Data collection

Takako Saotome

National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Rehabilitati on

physician

Data collection

Yuki Aihara National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Physiothera pist

Data collection

Yosuke Ariake National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Physiothera pist

Data collection

Mai Fujiwara National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Physiothera pist

Data collection

Mizuki Takeuchi

National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Physiothera pist

Data collection

Takayuki Tateishi

National Center of Neurology and Psychiatry, Kodaira, Tokyo 187-8551, Japan

Physiothera pist

Data collection

Koyo Tsujikawa

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Kuniyuki Endo Nagoya University Hospital, Nagoya,

Aichi 466-8560, Japan

Sub

Investigator

Data collection Aya Ogura Nagoya University Hospital, Nagoya,

Aichi 466-8560, Japan

Sub

Investigator

Data collection Seiya Noda Nagoya University Hospital, Nagoya,

Aichi 466-8560, Japan

Sub

Investigator

Data collection Hirotaka

Nakanishi

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Kazuhiro

Ikumi

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Daisuke Ito Nagoya University Hospital, Nagoya,

Aichi 466-8560, Japan

Sub

Investigator

Data collection Makoto

Hattori

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Kiyoaki

Takeda

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Kenji

Yoshimura

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Sub

Investigator

Data collection Rie Kanki Nagoya University Hospital, Nagoya,

Aichi 466-8560, Japan

Sub

Investigator

Data collection Michiyo

Taniguchi

Nagoya University Hospital, Nagoya, Aichi 466-8560, Japan

Other Data collection Satoshi

Nakano

Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Principal Investigator (Former)

Data collection

Rie Kanki Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection Kenji

Yoshimura

Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection Kiyoaki

Takeda

Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection

Maiko Hayashi Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection Minako Wada Osaka City General Hospital, Osaka-

city,Osaka 534-0021, Japan

Other Data collection Michiyo

Taniguchi

Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection Ayumi

Murakami

Osaka City General Hospital, Osaka- city,Osaka 534-0021, Japan

Sub

Investigator

Data collection Kenya Murata Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Principal Investigator

Data collection Masaya

Hironishi

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Sub

Investigator

Data collection Yasuhiro

Hiwatani

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Sub

Investigator

Data collection Masaaki Yasui Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Masae Izawa Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Jinsoo Koh Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Maki

Hosokawa

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Sub

Investigator

Data collection Megumi Mori Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Yoshiaki

Nakayama

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Sub

Investigator

Data collection Shoko Yorozu Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Junko Taruya Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Sub

Investigator

Data collection Chigusa Ohno Wakayama Medical University Hospital,

Wakayama 641-8510, Japan

Other Data collection Shinji

Kawasaki

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Other Data collection Yukihide

Nishimura

Wakayama Medical University Hospital, Wakayama 641-8510, Japan

Other Data collection Yoshimichi

Miyazaki

Tokushima University Hospital, Tokushima 770-8503, Japan

Sub

Investigator

Data collection Naoko Matsui Tokushima University Hospital,

Tokushima 770-8503, Japan

Sub

Investigator

Data collection Hiroki

Yamazaki

Tokushima University Hospital, Tokushima 770-8503, Japan

Sub

Investigator

Data collection Taiki

Furumoto

Tokushima University Hospital, Tokushima 770-8503, Japan

Other Data collection Teruaki

Masuda

Kumamoto University Hospital, Kumamoto 860-8556, Japan

Sub

Investigator

Data collection

Yasuhiro Yonemochi

Kumamoto University Hospital, Kumamoto 860-8556, Japan

Other Data collection Nozomu

Tawara

Kumamoto University Hospital, Kumamoto 860-8556, Japan

Other Data collection Koutarou

Takamatsu

Kumamoto University Hospital, Kumamoto 860-8556, Japan

Sub

Investigator

Data collection Marjolein van

Heur-Neuman

Leiden University Medical Center, Leiden 2333 ZA, Netherlands

Other Data collection Zaida Koeks Leiden University Medical Center,

Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection Chiara

Straathof

Leiden University Medical Center, Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection Martha

Mosselman

Leiden University Medical Center, Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection Yvonne Krom Leiden University Medical Center,

Leiden 2333 ZA, Netherlands

Others Data collection Alexander

Lipka

Leiden University Medical Center, Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection E. Strijbos Leiden University Medical Center,

Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection E. Niks Leiden University Medical Center,

Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection J. Verschuuren Leiden University Medical Center,

Leiden 2333 ZA, Netherlands

Sub

Investigator

Data collection Filip Eftimov Academic Medical Centre, University of

Amsterdam, Amsterdam AZ 1105, Netherlands

Sub

Investigator

Data collection

Guido Clerx Academic Medical Centre, University of Amsterdam, Amsterdam AZ 1105, Netherlands

Others Data collection

Tamar Gibson Academic Medical Centre, University of Amsterdam, Amsterdam AZ 1105, Netherlands

Sub

Investigator

Data collection

Anneke van der Kooi

Academic Medical Centre, University of Amsterdam, Amsterdam AZ 1105, Netherlands

Sub

Investigator

Data collection

Barbara Christen

University Hospital Zurich, Zurich 8091, Switzerland

Other Data collection Jens Petersen University Hospital Zurich, Zurich 8091,

Switzerland

Sub

Investigator

Data collection Evelyne

Cataldo

University Hospital Zurich, Zurich 8091, Switzerland

Others Data collection Dan Nguyen-

Kim

University Hospital Zurich, Zurich 8091, Switzerland

Sub

Investigator

Data collection Gustav

Andreisek

University Hospital Zurich, Zurich 8091, Switzerland

Sub

Investigator

Data collection

Sebastian Frese

University Hospital Zurich, Zurich 8091, Switzerland

Other Data collection Violeta

Mihaylova

University Hospital Zurich, Zurich 8091, Switzerland

Sub

Investigator

Data collection Diana kallies University Hospital Zurich, Zurich 8091,

Switzerland

Others Data collection Sandro

Mueller

University Hospital Zurich, Zurich 8091, Switzerland

Others Data collection Andrea

Boehler

University Hospital Zurich, Zurich 8091, Switzerland

Others Data collection Laura

Hennelly

University College London Hospital, London WC1N 3BG, UK

Nurse Data collection Natalia Budnik University College London Hospital,

London WC1N 3BG, UK

Sub

Investigator

Data collection Liying Xing University College London Hospital,

London WC1N 3BG, UK

Nurse Data collection Kerry Guile University College London Hospital,

London WC1N 3BG, UK

Nurse Data Cathleen

Chabo

University College London Hospital, London WC1N 3BG, UK

Nurse Data collection Heather

Hunter

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Other Data collection Dorothy

Carman

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Helen

Pilkington

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Maria Price Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Philip Brown Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Sub

Investigator

Data collection Ann McNichol Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Rory Durcan Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Sub

Investigator

Data collection Angela Green Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Fairbarin

Smith

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Kathryn

Walker

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection Sean O'Dowd Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Sub

Investigator

Data collection Louise Wibin Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Sub

Investigator

Data collection Ann Mcnichol Clinical Ageing Research Unit,

Newcastle upon Tyne NE4 5PL, UK

Nurse Data collection

Claire McDonald

Clinical Ageing Research Unit, Newcastle upon Tyne NE4 5PL, UK

Sub

Investigator

Data collection Julie Chadwick Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Nurse Data collection S.M.Ammar

Raza

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Mahrajan

Raman

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Catherine

Lambe

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Nurse Data collection Hilary Prais Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Other Data collection Nikki Harwood Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Ammar Rita Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Maharajan

Raman

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Nikki Harwood Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Catherine

Lambe

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Nurse Data collection Diane Vassallo Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection James Lilleker Salford Royal NHS Foundation Trust,

Salford, Manchester M6 8HD, UK

Sub

Investigator

Data collection Shirley

Caldwell

Salford Royal NHS Foundation Trust, Salford, Manchester M6 8HD, UK

Nurse Data collection Armgan Khan Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Other Data collection Andres

Keichian

Nerve and Muscle Center of Texas, Houston, TX 77030, USA

Sub

Investigator

Data collection Mohanad

Alzubaidi

Nerve and Muscle Center of Texas, Houston, TX 77030, USA

Sub

Investigator

Data collection Yeni Villegas Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Allen Tupue Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Ali Habeeb Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Other Data collection Gaurika Bhagi Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Kristen Beck Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Tatiana

Burbar

Nerve and Muscle Center of Texas, Houston, TX 77030, USA

Sub

Investigator

Data collection

Leigh Mauldin Nerve and Muscle Center of Texas, Houston, TX 77030, USA

Sub

Investigator

Data collection Zina Rasheed Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Nancy Cline Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Piper Harris Nerve and Muscle Center of Texas,

Houston, TX 77030, USA

Sub

Investigator

Data collection Kristy Osgood Neuromuscular Research Center,

Phoenix, AZ 85028, USA

Sub

Investigator

Data collection Preethi

Nimalka Sivakumar

Neuromuscular Research Center, Phoenix, AZ 85028, USA

Sub

Investigator

Data collection

Kulette Bootka

Neuromuscular Research Center, Phoenix, AZ 85028, USA

Other Data collection Vinodh

Narayanan

Neuromuscular Research Center, Phoenix, AZ 85028, USA

Sub

Investigator

Data collection Sidney Spector Neuromuscular Research Center,

Phoenix, AZ 85028, USA

Sub

Investigator

Data collection Christine Kline Neuromuscular Research Center,

Phoenix, AZ 85028, USA

Sub

Investigator

Data collection Mark Gonzalez Neuromuscular Research Center,

Phoenix, AZ 85028, USA

Sub

Investigator

Data collection Mamatha

Pasnoor

University of Kansas Medical Center, Fairway, KS 66205, USA

Sub

Investigator

Data collection Jeffrey

Statland

University of Kansas Medical Center, Fairway, KS 66205, USA

Sub

Investigator

Data collection Maureen

Walsh

University of Kansas Medical Center, Fairway, KS 66205, USA

Sub

Investigator

Data collection Melenie Glen University of Kansas Medical Center,

Fairway, KS 66205, USA

Sub

Investigator

Data Melissa

Currence

University of Kansas Medical Center, Fairway, KS 66205, USA

Sub

Investigator

Data collection Laura Herbelin University of Kansas Medical Center,

Fairway, KS 66205, USA

Sub

Investigator

Data collection Mazen

Dimachkie

University of Kansas Medical Center, Fairway, KS 66205, USA

Sub

Investigator

Data collection Gabrielle Rico University of Kansas Medical Center,

Fairway, KS 66205, USA

Sub

Investigator

Data collection Ayla McCalley University of Kansas Medical Center,

Fairway, KS 66205, USA

Sub

Investigator

Data collection and review/revision of the manuscript Katie Amato Brigham and Women's Hospital,

Boston, MA 02115, USA

Other Data collection Nikita Shah Brigham and Women's Hospital,

Boston, MA 02115, USA

Other Data collection

Kevin Zinchuk Brigham and Women's Hospital, Boston, MA 02115, USA

Other Data collection Kristen Roe Brigham and Women's Hospital,

Boston, MA 02115, USA

Sub

Investigator

Data collection Jessica

Rydingsward

Brigham and Women's Hospital, Boston, MA 02115, USA

Sub

Investigator

Data collection Mohammed

Salajegheh

Brigham and Women's Hospital, Boston, MA 02115, USA

Sub

Investigator

Data collection Samantha

Chused

Brigham and Women's Hospital, Boston, MA 02115, USA

Sub

Investigator

Data collection Katherine

Mirch

Brigham and Women's Hospital, Boston, MA 02115, USA

Other Data collection Thomas

Cochrane

Brigham and Women's Hospital, Boston, MA 02115, USA

Sub

Investigator

Data collection Patricia Flynn Brigham and Women's Hospital,

Boston, MA 02115, USA

Sub

Investigator

Data collection Amanda

Guidon

Massachusetts General Hospital, Boston, MA 02114, USA

Sub

Investigator

Data collection Sarah

Cornacchio

Massachusetts General Hospital, Boston, MA 02114, USA

Sub

Investigator

Data collection Fernando

Gonterman

Massachusetts General Hospital, Boston, MA 02114, USA

Sub

Investigator

Data collection Amy Ellrodt Massachusetts General Hospital,

Boston, MA 02114, USA

Sub

Investigator

Data collection Magen Bissell Massachusetts General Hospital,

Boston, MA 02114, USA

Sub

Investigator

Data collection Tyler Watkins Massachusetts General Hospital,

Boston, MA 02114, USA

Sub

Investigator

Data collection Ashley

Robichaud

Massachusetts General Hospital, Boston, MA 02114, USA

Sub

Investigator

Data collection Grace Bwala Massachusetts General Hospital,

Boston, MA 02114, USA

Sub

Investigator

Data collection Katharine

Nicholson

Massachusetts General Hospital, Boston, MA 02114, USA

Sub

Investigator

Data collection Patricia

Andres

Massachusetts General Hospital, Boston, MA 02114, USA

Other Data collection Melissa Arnold Massachusetts General Hospital,

Boston, MA 02114, USA

Other Data collection

Jaya Trivedi University of Texas Southwestern Medical Center, Dallas, TX 75390, USA

Sub

Investigator

Data collection Lauren Phillips University of Texas Southwestern

Medical Center, Dallas, TX 75390, USA

Sub

Investigator

Data collection Sharon

Chelnick

The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Others Data collection

Adam Quick The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Sub

Investigator

Data collection

Julie Agriesti The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Others Data collection

Filiz

Muharrem

The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Others Data collection

Miriam Freimer

The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Sub

Investigator

Data collection

Stanley Iyadurai

The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Sub

Investigator

Data collection

Wendy King The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Physical therapist

Data collection

Amro Stino The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Sub

Investigator

Data collection

Louise Mezache

The Ohio State University, Wexner Medical Center, Columbus, OH 43221, USA

Others Data collection

Veena Matthew

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Veronica

Martin

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA

Other Data collection Tahseen

Mozaffar

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Tiyonnoh Cash University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Trisha

Hufnagel

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Caroline

Peyronnard

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Sonia Nayyar University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Bethly

Aubourg

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA

Other Data collection Judith Pignac-

Kobinger

University of California Irvine, ALS &

Neuromuscular, Orange, CA 92868, USA Sub

Investigator

Data collection Alexandra

Almahuer

University of Miami, Miami, FL 33136, USA

Sub

Investigator

Data collection

Alexyz Milian University of Miami, Miami, FL 33136, USA

Sub

Investigator

Data collection and review/revision of the manuscript Chelsea Miller University of Miami, Miami, FL 33136,

USA

Sub

Investigator

Data collection Eric Greidinger University of Miami, Miami, FL 33136,

USA

Sub

Investigator

Data collection Lisa Harlow University of Miami, Miami, FL 33136,

USA

Other Data collection Bethly

Aubourg

University of Miami, Miami, FL 33136, USA

Other Data collection Judith Pignac-

Kobinger

University of Miami, Miami, FL 33136, USA

Other Data collection Kristen Riley Johns Hopkins University School of

Medicine, Baltimore, MD 21287, USA

Other Data collection Lora Clawson Johns Hopkins University School of

Medicine, Baltimore, MD 21287, USA

Sub

Investigator

Data collection Alpa Uchil Johns Hopkins University School of

Medicine, Baltimore, MD 21287, USA

Sub

Investigator

Data collection Lisa

Christopher- Stine

Johns Hopkins University School of Medicine, Baltimore, MD 21287, USA

Sub

Investigator

Data collection

Rachel Slusher Johns Hopkins University School of Medicine, Baltimore, MD 21287, USA

Other Data collection Sowmya

Kumble

Johns Hopkins University School of Medicine, Baltimore, MD 21287, USA

Other Data collection Kristen Riley Johns Hopkins University School of

Medicine, Baltimore, MD 21287, USA

Other Data collection Julie Khoury Oregon Health & Science University,

Portland, OR 97239, USA

Principal Investigator (Former)

Data collection

Harpreet Kaur Oregon Health & Science University, Portland, OR 97239, USA

Other Data collection Julie Khoury Oregon Health & Science University,

Portland, OR 97239, USA

Sub

Investigator

Data collection Diana

Dimitrova

Oregon Health & Science University, Portland, OR 97239, USA

Other Data collection Brooke

Bernard

Oregon Health & Science University, Portland, OR 97239, USA

Other Data collection Colleen

Anthonisen

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Natasha Sundby

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Erica Goude UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Candace Aguilar

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Carly Davis UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Jaijeet Toor UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Randev Sandhu

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Linda Johnson UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Michelle Cregan

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Sasa Yang UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Sarah Macabales

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Corey Owens UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Criag Mcdonald

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

James Ha UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Lisa Williams UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Alina Nicorici UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Eric Henricson UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Sub

Investigator

Data collection

Brooke Bernard

UC Davis School of Medicine, Neuromuscular Research Center, Sacramento, CA 95817, USA

Other Data collection