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Supplemental Table A Patients’ responses to questions regarding their ICU stay – Day 3, 28 and 90

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Supplemental Table A Patients’ responses to questions regarding their ICU stay – Day 3, 28 and 90

All Patient Protocolized Sedation + Daily

Interruption (PS + DI) Protocolized Sedation (PS) Day 3 Day 28 Day 90 Day 3 Day 28 Day 90 Day 3 Day 28 Day 90

N 155 121 100 83 62 51 72 59 49

1. Remember admission to

hospital

Clearly 63(41) 56(47) 38(38) 31(38) 25(42) 20(39) 32(45) 31(53) 18(37) Hazily 39(26) 18(15) 23(23) 27(33) 12(20) 11(22) 12(17) 6(10) 12(25) Not at all 51(33) 45(38) 39(39) 24(29) 23(38) 20(39) 27(38) 22(37) 19(39) 2. Remember

time before ICU

All of it 34(22) 13(11) 13(13) 18(22) 6(10) 9(18) 16(22) 7(12) 4(8) Some of

it 57(37) 41(35) 36(36) 30(37) 24(40) 18(35) 27(38) 17(29) 18(38) Nothing

at all 63(41) 64(54) 50(51) 34(42) 30(50) 24(47) 29(40) 34(59) 26(54) 3. Remember

being in the ICU

Yes 110(7) 88(74) 64(64) 59(73) 48(79) 36(71) 51(72) 40(69) 28(57) No 42(28) 31(26) 36(36) 22(27) 13(21) 15(29) 20(28) 18(31) 21(43) 4. Remember

all the stay

Yes 19(12) 10(9) 6(6) 11(13) 6(10) 4(8) 8(11) 4(7) 2(4)

No 134(88) 108(92) 94(94) 71(87) 54(90) 47(92) 63(89) 54(93) 47(96) 6. Enough

sleep

Yes 76(51) 75(66) 65(71) 45(55) 39(65) 33(70) 31(46) 36(68) 32(71) No 74(49) 38(34) 27(29) 37(45) 21(35) 14(30) 37(54) 17(32) 13(29)

If no, reason

Pain 15(20) 9(24) 6(22) 9(24) 5(24) 2(14) 6(16) 4(4) 4(31)

Noise 35(47) 19(50) 11(41) 16(43) 8(38) 4(29) 19(51) 11(5) 7(54)

Bright

light 23(31) 15(40) 9(33) 13(35) 7(33) 3(21 10(27) 8(47) 6(46)

Loud

speaking 30(41) 17(45) 9(33) 14(38) 7(33) 3(21) 16(43) 10(9) 6(46)

Bathing 3(4) 1(3) 4(15) 2(5) 0(0) 2(14) 1(3) 1(6) 2(15)

Tests 22(30) 6(16) 9(33) 9(24 3(14) 4(29) 13(35) 3(18) 5(9)

People entering

the room 25(34) 10(26) 10(37) 11(30) 5(24) 4(29) 14(38) 5(29) 6(46) Other 30(41) 23(61) 14(52) 15(41) 12(57) 7(50) 15(41) 11(65) 7(54) 6b. Prefer

more awake

Yes 30(22) 26(24) 20(23) 18(23) 12(20) 9(19) 12(19) 14(2) 11(27)

No 115(79) 89(77) 69(78) 62(78) 48(80) 39(81) 53(82) 41(75) 30(73) 9. remember

transfer from ICU

Clearly 98(65) 65(56) 54(55) 51(63) 37(62) 34(67) 47(68) 28(49) 20(42) Hazily 34(23 ) 39(33) 27(27) 21(26) 19(32) 8(16) 13(19) 20(35) 19(40) Not at all 18(12) 13(11) 18(18) 9(11) 4(7) 9(18) 9(13.) 9(16) 9(19) 10. Panic or

apprehension

Yes 39(26) 26(23) 15(16) 20(26) 12(21) 11(23) 19(27) 14(25) 4(8)

No 109(74) 87(77) 80(84) 58(74) 45(79) 37(77) 51(73) 42(75) 43(92) 11a. Intrusive Yes 26(18) 21(18) 12(12) 14(18) 9(16) 6(12) 12(18) 12(21) 6(13)

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Data presented as N (%) unless otherwise indicated.

memories No 118(82) 93(82) 86(88) 63(82 ) 49(85) 44(88) 55(82) 44(79) 42(88)

12. Talked about it with

Family

member 107(69) 96(79) 81(81) 56(68) 50(81) 40(78) 51(71) 46(78) 41(84) Doctor on

the ward 13(8) 17(14) 17(17) 8(10) 8(13) 9(18) 5(7) 9(15) 8(16)

Nurse on

the ward 10(6) 8(7) 7(7) 5(6.0) 5(8) 4(8) 5(7) 3(5) 3(6)

family

doctor 1(0.6) 16(13) 17(17) 1(1) 9(15) 9(18) 0(0) 7(12) 8(16)

No one 34(2) 18(5) 11(11) 18(22) 7(11) 4(8) 16(22) 11(19) 7(14)

Other 8(5) 12(10) 8(8.) 5(6) 7(11) 2(4) 3(4) 5(9) 6(12)

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Supplemental Table B. Memories by randomization group on days 3, 28, 90

Day 3 Day 28 Day 90

What do you remember?

Protocolized Sedation + Daily Interruption N = 80

Protocoli zed Sedation N = 64 P

Protocoli zed Sedation + Daily Interrupti on N = 58

Protoco lized Sedatio n

N = 55 P

Protocoliz ed Sedation + Daily Interruptio n

N = 48

Protocoli zed Sedation N = 44 P Factual memories

Any factual memory (≥1

of these 11) 77 (96) 63 (98) 0.63 56 (97) 51 (93) 0.43 46 (96) 41 (93) 0.67 Faces 43 (54) 37 (58) 0.63 32 (55) 23 (42) 0.16 25 (52) 17 (39) 0.20 Family 61 (76) 45 (70) 0.42 48 (83) 39 (71) 0.13 33 (69) 29 (66) 0.77 Alarms 40 (50) 31 (48) 0.85 30 (52) 19 (35) 0.07 25 (52) 16 (36) 0.13 Voices 49 (61) 39 (61) 0.97 35 (60) 26 (47) 0.16 28 (58) 27 (61) 0.77 Lights 39 (49) 25 (39) 0.25 31 (53) 19 (35) 0.04 26 (54) 12 (27) 0.008 Darkness 20 (25) 16 (25) 1.0 19 (33) 7 (13) 0.01 17 (35) 8 (18) 0.06 Clock 18 (23) 12 (19) 0.58 12 (21) 14 (25) 0.55 11 (23) 7 (16) 0.40 Breathing

tube 49 (61) 39 (61) 0.97 35 (60) 25 (45) 0.11 27 (56) 20 (45) 0.30

Suctioning 34 (43) 25 (39) 0.68 24 (41) 17 (31) 0.25 17 (35) 11 (25) 0.28 Tube in

nose 35 (44) 27 (42) 0.85 26 (45) 23 (42) 0.75 20 (42) 16 (36) 0.60 Ward

rounds 33 (41) 21 (33) 0.30 19 (33) 19 (35) 0.84 18 (38) 17 (39) 0.91 Memories of feelings

Any memory of feelings (≥1 of these

6) 70 (88) 59 (92) 0.36 47 (81) 44 (80) 0.89 40(83) 32 (73) 0.22 Pain 31 (39) 20 (31) 0.35 17 (29) 16 (29) 0.98 10 (21) 10 (23) 0.83 Being

uncomfortab

le 47 (59) 29 (45) 0.11 29 (50) 29 (53)

0.771

9 27 (56) 20 (45) 0.30 Feeling

confused 47 (59) 35 (55) 0.62 28 (48) 25 (45) 0.77 27 (56) 22 (50) 0.55 Feeling

anxious or

frightened 46 (58) 39 (61) 0.68 33 (57) 28 (51) 0.52 23 (48) 23 (52) 0.68 Panic 29 (36) 31 (48) 0.14 17 (29) 19 (35) 0.55 15 (31) 14 (32) 0.95 Feeling

down 30 (38) 18 (28) 0.24 17 (29) 19 (35) 0.55 16 (33) 14 (32) 0.88 Delusional memories

Any delusional memory (≥1

of these 4) 58 (72) 46(72) 0.93 42 (72) 37 (67) 0.55

30

(62) 27(61) 0.91

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Hallucinatio

ns 36 (45) 24 (38) 0.36 23 (40) 22 (40) 0.97

19

(39) 15 (34) 0.59 Dreams 43 (54) 37 (58) 0.63 30 (52) 27 (49) 0.78

23

(48) 23 (52) 0.68

Nightmares 26 (33) 20 (31) 0.87 14 (24) 24 (44) 0.03 12

(25) 14 (32) 0.47 Feeling

people were trying to hurt

you 12 (15) 11 (17) 0.72 13 (22) 5 (9) 0.05

14

(29) 7 (16) 0.13

Data presented as N (%) unless otherwise indicated.

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Supplemental Table C Recall on days 3, 28 and 90 after discharge

All Patient

Patients who reported they “remembered being

in ICU”

Patients who reported they

“Did not remember being in the ICU

P value*

Day 3 Day 28 Day 90 Day 3 Day 28 Day 90 Day 3 Day 28 Day 90

N 155 121 100 110 88 64 42 31 36

Remember admission to hospital

Clearly 63(41) 56(47) 38(38) 50(46) 46(53) 24(38) 11(26) 10(32) 14(39)

0.07 Hazily 39(26) 18(15) 23(23) 27(25) 13(15) 18(28) 12(29) 4(13) 5(14)

Not at all 51(33) 45(38) 39(39) 31(29) 28(32) 22(34) 19(45) 17(55) 17(47) Remember

time before ICU

All of it 34(22) 13(11) 13(13) 30(28) 11(13) 8(13) 3(7) 2(6) 5(14)

0.51 Some of

it 57(37) 41(35) 36(36) 37(34) 31(36) 27(42) 19(45) 10(32) 9(26) Nothing

at all 63(41) 64(54) 50(51) 42(38) 44(51) 29(45) 20(48) 19(61) 21(60) Remember

being in the ICU

Yes 110(7) 88(74) 64(64)

No 42(28) 31(26) 36(36)

Remember all the stay

Yes 19(12) 10(9) 6(6) 17(15) 10(11) 6(9) 0(0) 0(0) 0(0)

0.06

No 134(88)

108(92

) 94(94) 93(85) 78(89) 58(91) 41(100) 30(100) 36(100) Enough

sleep Yes 76(51) 75(66) 65(71) 50(46) 53(62) 40(66) 24(62) 20(77) 25(81) 0.17

If no, reason

Pain 15(20) 9(24) 6(22) 13(22) 7(22) 6(29) 1(7) 2(33) 0(0) 0.62

Noise 35(47) 19(50) 11(41) 26(45) 16(50) 11(52) 8(53) 3(50) 0(0) 1.0 Bright

light 23(31) 15(40) 9(33) 16(28) 12(38) 8(38) 6(40) 3(50) 1(17) 0.66 Loud

speaking 30(41) 17(45) 9(33) 21(36) 13(41) 9(43) 8(53) 4(67) 0(0) 0.38

Bathing 3(4) 1(3) 4(15) 3(5) 1(3.13) 4(19) 0(0) 0(0) 0(0) 1.0

Tests 22(30) 6(16) 9(33) 16(28) 6(19) 9(43) 5(33) 0(0) 0(0) 0.56

People entering

the room 25(34) 10(26) 10(37) 17(29) 9(28) 10(48) 7(47) 1(17) 0(0) 1.0 Other 30(41) 23(61) 14(52) 27(47) 19(59) 11(52) 3(20) 4(67) 3(30) 1.0 Prefer to

be more

awake Yes 30(21) 26(23) 20(22) 17(16) 18(21) 12(20) 12(31) 7(26) 8(27) 0.59 Remember

transfer from ICU

Clearly 98(65) 65(56) 54(55) 81(75) 55(63) 46(73) 17(44) 9(31) 8(22)

0.0009 Hazily 34(23 ) 39(33) 27(27) 21(19) 27(31) 13(21) 11(28) 12(41) 14(39)

Not at all 18(12) 13(11) 18(18) 6(6) 5(6) 4(6) 11(28) 8(28) 14(39)

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* P value – comparison of those with who reported they remembered being in the ICU and those who reported they did not at day 28.

Data presented as N (%) unless otherwise indicated.

Panic or apprehensi

on Yes 39(26) 26(23) 15(16) 29(28) 16(20) 10(17) 9(22) 9(31) 5914) 0.20

Intrusive memories during

ICU Yes 26(18) 21(18) 12(12) 20(20) 14(17) 8(13) 4(10) 5(17) 4(11) 1.0

Talked about it with…

Family

member 107(69) 96(79) 81(81) 75(68) 70(80) 52(81) 29(69) 24(77) 29(81) 0.80 Doctor

on the

ward 13(8) 17(14) 17(17) 9(8) 15(17) 11(18) 3(7) 2(6) 6(17) 0.23

Nurse on

the ward 10(6) 8(7) 7(7) 8(7) 8(9) 6(9) 2(5) 0(0) 1(3) 0.11

family

doctor 1(0.6) 16(13) 17(17) 1(1) 12(14) 12(19) 0(0) 4(13) 5(14) 1.0 No one 34(22) 18(15) 11(11) 24(22) 13915) 4(6) 10(24) 5(16) 5(14) 1.0

Other 8(5) 12(10) 8(8) 5(5) 12(14) 6(9) 3(7) 0(0) 2(6) 0.04

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