Here@HEARS
T his issue
2017 Events P.4 In the NewsP.6
I-HEARS in Numbers P.7 The Making of… P.8 I-HEARS in Research P.9 2018 Events P.10 Strategic Partners P.11 About Institute-HEARS P.12
ISSUE
2018
Transforming Lives with Hearing
02
Institute-HEARS
Gearing up
for the future of CHILDREN WITH HEARING LOSS
See FEATURE: Hear & Be Heard Program P.2
Prof. Dato’ IR. Dr. Mohd Marzuki (seventh from left) and Dato’ Dr. Hajah Zailan with representative from Ministry of Health and the I-HEARS team during the first awareness seminar in Shah Alam.
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Institute-HEARS is proud to announce a nationwide program relating to Hearing Loss in Children: Hear and Be Heard. On 6th November 2017, the program was officially launched by the Vice Chancellor of UKM, Prof.
Tan Sri Dato' Seri Dr. Noor Azlan Ghazali together with Yayasan Sime Darby’s Governing Council Member, Tan Sri Dato' Seri Dr. Wan Mohd Zahid Mohd Noordin;
Hearing Loss in Children:
The RM300,000 Project
special guests include YSD CEO, Pn. Yatela Zainal Abidin and the Ministry of Health’s Head of Otorhinolaryngology, Dato' Dr Siti Sabzah Mohd Hashim. Read coverage on the launch here.
This 3-years program, as funded by Yayasan Sime Darby (YSD), aims to narrow the gap of achievement between hearing impaired children and their normal hearing peers through enhancing listening and spoken language. A multifaceted initiative will be adopted involving the hearing impaired children, parents /families of the hearing impaired children, and the hearing related professionals. The program consists of:
Awareness Programs, Parents Workshops, Series of Professional Short Courses and distribution of appropriate resource materials to the public and the hearing impaired community.
There will also be a website dedicated to this program.
(Cont. next page) The mock cheque handing over ceremony during the program
launch at UKM Bangi.
4 Parents Workshops 2 Awareness Seminars 2 Professional Short Courses
3 Parents Workshops 1 Awareness Seminar 1 Professional Short Course
2018 2019 2020
1 Parents Workshop 1 Awareness Seminar 1 Parents Workshop
2 Awareness Seminars 1 Professional Short Course
Project Timeline
2017
Awareness Seminars
As supported by Ministry of Health Malaysia
Objective: To increase awareness on importance of early diagnosis and intervention of children with hearing loss.
9thAugust: Hospital Shah Alam, Selangor
Attended by 377 healthcare professionals and the public with the assistance from State Healthcare Departments of Selangor, WP Kuala Lumpur and Putrajaya, and Negeri Sembilan.
22ndNovember: Hospital Permai, Johor Bahru
Attended by 190 healthcare professionals and the public with the assistance from State Healthcare Departments of Johor and Melaka.
View more photos here.
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Info pack about Hearing Loss in Children and Storybook “Adam Boleh Mendengar”
6thNov:Launch of Hear and Be Heard Resource Materials Institute-HEARS developed and published culturally appropriate resource materials to support parents and families of hearing impaired children, as well as to increase awareness about hearing loss in children to the public.
Read more about launchhereand watchvideo.
See video on resource materialshere.
Parents Workshops
As supported by Ministry of Health Malaysia
Objective: To train parents to become effective language facilitators for their hearing impaired child and empower them to become advocates for their own children.
22ndNovember: Hospital Permai, Johor Bahru
Attended by 20 parents with guest parents from the UKM Cochlear Implant Program. Also supported by Cochlear Ltd.
View more photos here.
Professional Short Courses
In collaboration with Med-El Malaysia
Objective: To increase number of skilled professionals in habilitation for hearing impaired children.
4-6thDecember: Pusat Kembangan Pendidikan, UKM KL Attended by 30 professionals. The course was endorsed by AG Bell Academy for Continuing Education Units (CEUs)
2017
2017 Events
Guests from Sabah Society for the Deaf and Queen Elizabeth Hospital
Institute-HEARS received guests from Sabah Society for the Deaf (SSD) and Queen Elizabeth Hospital (QEH), Kota Kinabalu, Sabah on 15th March 2017. They came to observe UKM’s aural habilitation set up, as they plan to do a similar set up in Kota Kinabalu. It was a fruitful discussion for all involved.
First Med-El's Auditory Brainstem
Implant (ABI) surgery & use of Maestro 7 software intra-op in Malaysia
On 2nd March 2017, Institute-HEARS was invited to be one of the selected few to witness the live operation of the first ever Med-El's Auditory Brainstem Implant (ABI) in UKMMC.
On a separate occasion (17th October 2017) UKM was also the first organization to use the Med-El’s Maestro 7 intra-op for a cochlear implant surgery as performed by Prof. Dr. Goh Bee See.
Hear Out at Farm in the City
On 19th March 2017, Institute-HEARS together with Yayasan Budi Penyayang Malaysia (PENYAYANG) organized Hear Out at Farm in the City. This program was specifically for families with pre-school hearing impaired children receiving habilitation at UKM. It was a fun-filled day where the families were facilitated to
”conduct therapy” outside of clinic and home, and they recorded it in an experience book.
Hearing Awareness Talk & Screening Program
Institute-HEARS was invited to give a talk about hearing health and care at Masjid Kampung Tunku on 19thApril 2017, as hosted by Yayasan Wiba Prima and Biro Muslimah Masjid Kampung Tunku.
Institute-HEARS in collaboration with Audiology Programme UKM took the opportunity to conduct hearing screenings on the
participants from Kampung Tunku residents and students of Maahad Tahfiz Kampung Tunku.
Volunteers for "Ride The Train”
Program
Malaysian Association of Speech and Hearing (MASH) and Yayasan Wiba Prima (YWP) organized an
awareness program, "Ride The Train” which was held on 10th May 2017 at KL Sentral in conjunction with the Better Hearing and Speech Month in May. Institute- HEARS was involved as the volunteers for the program.
Read the news coverage here.
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Institute-HEARS as the beneficiary of Petronita’s Orchid Run & Ride
Institute-HEARS was one of the beneficiaries of Petronita KL's Orchid Run & Ride 2016. On 20th of July 2017, PETRONITA organized a small get together to celebrate some of the recipients of the funding whom are UKM CI Program patients. A total of 32 UKM patients from all over the country benefited from last year's RM60,000 donation, in the form of hearing aids, assistive listening devices and cochlear implant accessories. More details here.
This year, Institute-HEARS is once again the beneficiary for Petronita’s Orchid Run & Ride 2017. We received a
generous RM100,000 donation; we opened a booth and conducted a hearing screening on event day and one of our UKM CI recipient, Kai Xin, performed rhythmic gymrama on stage. It is hoped that more individuals with hearing
impairment will benefit from this funding. More about the event online.
Komuniti TUTUR
Yayasan Budi Penyayang Malaysia (PENYAYANG) has been supporting UKM pediatric patients with hearing loss since October 2001 through Tadika TUTUR. A new concept of collaboration was discussed and Komuniti TUTUR was “born”, involving Institute-HEARS, Faculty of Health Sciences, Hospital Canselor Tuanku Muhriz, Faculty of Medicine and Faculty of Education. The signing ceremony of the Collaboration Agreement between UKM and PENYAYANG took place on 7thSept 2017 where UKM was represented by Prof. Dato’ Dr.
Imran Ho Abdullah and Dato’ Leela Mohd Ali represented PENYAYANG.
2017 Events (Cont.)
Join the Conversation
#institutehears
#ihearsukm
#ukmciprogram
#transformingliv eswithhearing
website:
ukm.my/ihears
facebook:
@institutehears
instagram:
@institutehears
Institute-HEARS supports World Hearing Day (3
rdMarch) and we are proud that one of our programs was featured in the World Health Organization's Activity Report for World Hearing Day 2017. Link here.
Tiagarajan Annamalay (I-HEARS Counselor) listed the five stages of grieving when dealing with hearing loss in his article, “Emosi & Kehilangan Deria Pendengaran” as featured in the iSIHAT magazine, April 2017 issue.
In May 2017, Radio station IKIM.fm interviewed Prof. Dr.
Goh Bee See (current I-HEARS Deputy Director) about cochlear implants. Have a listen here.
Nadirah Hanim Mannan (I-HEARS Lecturer /Audiologist) highlighted important points about hearing loss in children in her article, “A-Z of Hearing Loss” as published in the Sunday Star , on 2
ndJuly 2017. Read the full article here.
How to engage with a hearing impaired child? Dr.
Deepashini Harithasan (I-HEARS Lecturer /Researcher) shared tips on this in the Sunday Star , dated 30
thJuly 2017. Full article here.
Mohamad Firdaus Latip (I-HEARS Audiologist) defined hearing loss as interviewed by KOSMO! The exchange was published on 31
stOctober 2017, and is available online.
Tey Shi Rou (I-HEARS Speech-Language Therapist), listed the chronological stages of hearing and speech development in children in the November 2017 issue of Parenthood Magazine Malaysia.
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In the News
1
2
3
4
5
6
7
11
STUDENTS
The only Malaysian program featured in the World Health Organization's Activity
Report for World Hearing Day 2017
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I-HEARS in Numbers
4
GRANTS
5
RESEARCH
23
PUBLICATIONS
3
INTELLECTUAL PROPERTY
3
MOU/MOA
8
ALLIANCES
4
HUMAN RESOURCE
6
PROGRAMS
1
FEATURE
12 Articles (6 in ISI) 5 popular writing
1 storybook “Adam Boleh Mendengar”
4 seminars
1 information pack 1 GUP
1 GGPM 1 FRGS
1 Yayasan Sime Darby
4 Active ongoing research Participate in Implanted Recipient Observational Study (IROS)
Awareness materials for Hear and Be Heard Program
2 Ministries
6 Corporate Organizations
New staffs:
2 Lecturers
1 Administrative Officer 1 Project Coordinator Yayasan Sime Darby Yayasan Budi Penyayang Malaysia
Med-El Malaysia
8 Masters 2 PhD 1 ORL
1 Community Program 1 Hearing Talk & Screening 2 Awareness Programs 1 Professional Short Course 1 Parents Workshop
RM100K
DONATION
For the second consecutive year, Institute-HEARS is the beneficiary for Petronita KL’s Orchid Run & Ride 2017.
Donation received will be used to aid
needy hearing impaired individuals.
The Making of…
“Transforming Lives with Hearing” Video
UKM Cochlear Implant Recipients’ Profile:
The UKM Cochlear Implant (CI) Program is the pioneer for habilitation program for deaf children in Malaysia since 1995. To date, more than 400 patients have received benefits from the program. The UKM CI Program serves as a platform for children to learn to listen, speak and develop language like their normal hearing peers, that would then enable them to enroll into mainstream schools. In fact, a local study looking at the long term outcomes of the UKM paediatric implantees reported that more than half of the implantees (58.5%) are enrolled in mainstream school, using oral spoken language as their mode of communication (Goh et al., 2017).
Goh, B. S., Fadzilah, N., Abdullah, A., Othman, B. F., & Umat, C. (2017). Long-term outcomes of Universiti Kebangsaan Malaysia Cochlear Implant Program among Pediatric Implantees. Internasional Journal of Pediatric Otorhinolaryngology, 105,27-32.
Institute-HEARS manages the UKM CI Program and we are proud to note that more patients are being intervened early, and receiving the required habilitation. Yet, more work needs to be done where experts and community alike need to come together to help close the gap between hearing impaired children and normal hearing children.
One such initiative is a collaboration with Cochlear Ltd in producing a video featuring recipients of the UKM CI Program (their profiles on the side).
The team brainstormed the script and filmed in just under two days. Thank you Cochlear Ltd for the continuous support in “Transforming Lives with Hearing”.
Watch the full videohere.
Amos Sum, 3
Implanted at 2.5 years old;
Parents’ hopes: “I hope Amos can live a fulfilling
life, accepted by the society and get equal
opportunities in education and employment without
discrimination and labels”.
Mohamad Farzan, 7
Implanted at 3 years old;
Parents: “Before the implant he could only say ‘hi’ and ‘bye’. After switch on his speech and language
are developing rapidly. He is now studying in a mainstream school”.
Tee Le Peng, 22
Implanted at 2.5 years old, currently a University student;
“Being deaf is a challenge but also a privilege. Being deaf exposes us to
challenges and learning opportunities that are not available for others. To go far, reach out! You
are never alone!”
Lavinsh, 3
Implanted at 2 years old;
Parents’ advice to others:
“Seek professional advice quickly as early intervention
is important. Do some research and learning on
your own as well, talk to fellow parents to learn and
share. Work closely with therapist and audiologist – they are very supportive”.
I-HEARS in Research
Grant: Fundamental Research Grant Scheme (FRGS)
* Commenced: 2017
* Status: In Progress, Active
Grant: Geran Universiti Penyelidikan (GUP)
* Commenced: 2017
* Status: In Progress, Active
Grant: Geran Galakan Penyelidik Muda (GGPM)
* Commenced: 2017
* Status: In Progress, Active
Grant: Yayasan Sime Darby (YSD)
* Commenced: 2017
* Status: In Progress, Active
Grant: Dana Pembangunan Penyelidikan (DPP-INSTITUT)
* Commenced: 2018
* Status: In Progress CHARACTERIZING COGNITIVE FUNCTION IN OLDER
ADULTS WITH IMPAIRED HEARING USING A NOVEL MIXED-PAIRS DICHOTIC LISTENING
AN EVIDENCE-BASED APPROACH TO OVERCOMING BARRIERS TO EARLY IDENTIFICATION AND
INTERVENTION OF HEARING LOSS IN CHILDREN
A COMPARISON OF PARENTAL LANGUAGE INPUT IN COCHLEAR IMPLANTED CHILDREN AND CHILDREN WITH NORMAL HEARING
HEAR AND BE HEARD PROGRAM - HEARING LOSS IN CHILDREN: APPROACHES TO EARLY
IDENTIFICATION AND INTERVENTION THROUGH IMPROVING AWARENESS
IMPROVING INFORMATIONAL COUNSELING DELIVERY TO PARENTS OF HEARING IMPAIRED CHILDREN: “CHANGING THE CONVERSATION
FROM THE EAR TO BRAIN”
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MAINSTREAM SCHOOL READINESS FOR HEARING- IMPAIRED CHILDREN WITH COCHLEAR IMPLANTS
Grant: Geran Universiti Penyelidikan (GUP)
* Commenced: 2016
* Status: In Progress, Active
PEDIATRIC-IMPLANTED RECIPIENT OBSERVATIONAL STUDY (P-IROS)
Collaboration with Cochlear Limited
* Commenced: 2016
* Status: In Progress, Active
15 – 19
th: AVT Workshop
20
th: Hear and Be Heard - Parents Workshop (Central Zone)
2018 Events
10
Jan
March
April
May
August
Nov
3
rd: WHO’s World Hearing Day
12 – 14
th: Hear and Be Heard – Professional Short Course (Series 2)
11 – 13
th: UKM Cochlear Implant Training 16 – 17
th: Hear and Be Heard – Awareness Seminar and Parents Workshop
(Northern Zone)
Better Hearing and Speech Month
9– 11
th: Hear and Be Heard - Professional Short Course (Series 3)
10 – 11
th: Malaysian 2
ndHearing Congress Hear and Be Heard – Awareness Seminar and Parents Workshop (East Coast Zone)
Hear and Be Heard – Parents Workshop
(Southern Zone)
Strategic Partners
We have a few partners, from both government and private sectors, in our projects whom provide complete solutions with outstanding competence.
All together, we work to create the best strategic partnerships
and make successful outcomes .
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From the Editor’s Desk
From left:
Muhamad Hazwan Abdullah Administrative Assistant Mohamad Firdaus Latip Audiologist
Nadirah Hanim Mannan Lecturer/Audiologist Tey Shi Rou
Speech-Language Therapist Dr. Deepashini Harithasan Lecturer
Prof. Dr. Siti Zamratol-Mai Sarah Mukari
Director/Professor in Audiology Prof. Dr. Goh Bee See
Deputy Director/ENT Surgeon Airenchara Habir
Project Coordinator Hear and Be Heard
Rosmiza Musa
Administrative Officer Tiagarajan Annamalay Counsellor
Associate Members of Institute-HEARS 2017 Principal Associate Fellows Prof. Dr. Asma Abdullah Prof. Dr. Kartini Ahmad Prof. Dr. Hamzaini Abdul Hamid
Senior Associate Fellows AP Dr. Rogayah A Razak AP Dr. Manisah Mohd Ali AP Dr. Cila Umat AP Dr. Rafidah Mazlan AP Dr. Faizah Mohd Zaki AP Dr. Rafidah Mazlan
Associate Fellows Dr. Nashrah Maamor Dr. Haniza Abdul Wahat Dr. Wan Syafira Ishak Dr. Kew Thean Yean Dr. Noor Dina Hashim Dr. Fahrin Zara Nasseri
Cochlear Implant Clinicians Audiologists
Dr. Marniza Omar (Lecturer) Steven Lee Onn Wah (Lecturer) Afiq Ikmal Sahak
Lim Bee Ying Nadiah Abdul Aziz Nur’IzzatiMd Yusoff Wan Fazlina Wan Hashim Mohd Khairil Azahar Jamaludin Speech-Language Therapists Dr. Rahayu Mustaffa Kamal (Lecturer)
Fatin Hanim Mohamed Yusoff Hooi Poh Meng
Lee Kai Lea
Nor Shahrina Mohd Zawawi Sherin Sokmum
Siti Munirah Haris Clinical Psychologist AP Dr. Hjh. Normah Che Din (Lecturer)
Paediatrician
Dr. Juriza Ismail (Lecturer)
Here@HEARS presents Institute-HEARS in review for the year 2017. This issue highlights selected events as the Institute continues to expand and grow together with our partners and alliances, in line with our objective to transform lives with hearing. As we welcomed new faces to the team, the institute also bid farewell to one of its founding members, Dr. Basyariatul Fathi Othman. 2018 promises to be yet another exciting year as there are more programs and research projects in the pipeline.
We at Institute-HEARS are geared up for the future of the hearing
impaired community and we welcome collaborations from
everyone. Join the conversation and have a great 2018!
Institute of Ear, Hearing & Speech (Institute-HEARS)
Block 8, 3rd Floor, Fakulti Sains Kesihatan, UKM, Jalan Temerloh, 53200 Kuala Lumpur.
T: +603 9289 5132 F: +603 2698 6039 W: www.ukm.my/ihears E: [email protected]
About Institute-HEARS
Established in 2013 to close the gap between individuals with hearing loss and their normal hearing peers. We achieve this through multifaceted platforms which include fundamental and applied research related to hearing and hearing loss, clinical services, upskilling of professionals involved in the management of hearing impaired individuals and improving hearing loss awareness among professionals and the general public.
We are a group /team of dedicated and passionate professionals (audiologists, speech-language therapists, otologic surgeon, linguist, special educationist, counsellor, pediatrician, researcher) of Universiti Kebangsaan Malaysia (UKM). Our clinical services are the Ear, Nose and Throat (ENT) specialist clinic, audiology, speech- language therapy, counselling sessions, and a more specialized CI clinic that has been running since 1995.
Thousands of patients are currently receiving treatment from UKM.
All patients with hearing loss in UKM are under the care of a
transdisciplinary team who provide a family-centered /patient-
centered care. This distinguishes Institute-HEARS from other
hearing loss clinics /programs in Malaysia. Institute-HEARS also has
the biggest pool of experts from various background who work
synergistically in the management of hearing loss. By empowering
individuals with hearing loss to live and function in the mainstream
society, we are maximizing their full potentials.
