DAFTAR PUSTAKA
Albar, M., 1999. Counselling About Genetic Disease : an Islamic Perspective. Eastern Mediterranean Health Journal, 5(6).
Alfalah, Cece, Wisnumurti, Dewi A., Windiastuti, Endang dan Sjakti, Hikari A., et al., 2018. Pengaruh Kadar Hemoglobin Pre-transfusi dan Feritin Serum terhadap Pertumbuhan Fisik Pasien Thalasemia β Mayor. Sari Pediatri, 19(6), pp. 349-55.
Andayani, S. H., Sekarwana, N. dan Fadil, R., 2008. Association Between Age and Serum Ferritin Level with Bone Age Deficit in Children with Thalassemia Major. Paediatrica Indonesiana, 48(1), pp. 33-6.
Angastiniotis, M. dan Lobitz, S., 2019. Thalassemias : An Overview. International Journal of Neonatal Screening, 5(16).
Aqeel, A. A., 2007. Islamic Ethical Framework for Research Into and Prevention of Genetic Diseases. Nature Genetics, pp. 39(11), pp.1293-8.
Arijanty, L. dan Nasar, S. S., 2003. Masalah Nutrisi pada Thalassemia. Sari Pedriatri, 5(1), pp. 21-6.
Auda, R., Idjradinata, P. S. dan Djais, J. T., 2011. Risk Factors to Growth Retardation in Major Thalassemia. Majalah Kedokteran Bandung, 43(1), pp. 21-5 Aydinok, Y., 2012. Thalassemia. Hematology, 17(1), pp. S28-S31.
Bactiar, I. R., Fadil, R. dan M. S., Azhali, 2009. Hubungan Jumlah Darah Transfusi, Pemberian Deferoksamin dan Status Gizi dengan Kadar Seng Plasma pada Penderita Thalassemia Mayor Anak. Majalah Kedokteran Bandung, 41(2), pp. 99-104.
Baihaki, E. S., 2017. Gizi Buruk dalam Perspektif Islam. SHAHIH, 2(2), Juli - Desember.
De Sanctis, V., Soliman, A. T., Elsedfy, H. dan Skordis, N., et al., 2013. Growth and Endocrine Disorders in Thalassemia: The International Network on Endocrine Complications in Thalassemia (I-CET) Position Statement and
Guidelines. Indian Journal of Endocrinology and Metabolism, 1(17), pp.
8-18.
Ganguly, S., 2015. Thalassemia: An Inherited Autosomal Recessive Disorder of Human Blood. International Journal Current of Trends Pharmaceutical Research, 3(1) pp. 792-3.
Gibson, R. S., 2005. Principles of Nutritional Assessment. Oxford University Press.
Goldberg, E. K., Neogi, S., Lal, A. dan Higa, A., et al., 2018. Nutritional Deficiencies Are Common in Patients with Transfusion-Dependent Thalassemia and Associated with Iron Overload. Journal of food and nutrition research, 6(10), pp. 674–81. https://doi.org/10.12691/jfnr-6-10-9
Hendarto, A. dan Sjarif, D. R., 2011. Antropometri Anak dan Remaja. In: D. R. Sjarif, E. D. Lestari, M. Mexitalia dan S. S. Nasar, eds. Buku Ajar Nutrisi Pediatrik dan Penyakit Metabolik. Jakarta: Ikatan Dokter Anak Indonesia, pp. 23-35.
Hoffbrand, A. dan Moss, P., 2011. Genetic Disorders of Haemoglobin. In: Essential Haematology. 6th ed. London: Wiley Backwell, pp. 88-107.
Kemenkes RI, 2017. Penilaian Status Gizi. Jakarta: Kementerian Kesehatan Republik Indonesia.
Kemenkes RI, 2018. Keputusan Menteri Kesehatan No.HK.01.07/MENKES/1/2018 tentang Pedoman Nasional Pelayanan Kedokteran tentang Tatalaksana Thalasemia. Jakarta: Kementerian Kesehatan Republik Indonesia.
Krisbiyantoro, A., Salimo, H. dan Moelyo, A. G., 2017. Perbedaan Kadar Thyroid Stimulating Hormone dan Free Thyroxine pada Pasien Talasemia Β-Mayor dengan Kelasi Besi Deferasirox dan Deferiprone. Sari Pediatri, 19(4), pp.
209-13.
Made, Arimbawa dan Ketut, Ariawati., 2016. Profil Pertumbuhan, Hemoglobin Pre- transfusi, Kadar Feritin, dan Usia Tulang Anak pada Thalassemia Mayor.
Sari Pediatri, 13(4), pp. 299-304.
Mirhosseini, N. Z., Shahar, S., Kamaruddin, N. A. dan Mobarhan, M. G., 2013. Factors Affecting Nutritional Status Among Pediatric Patients with Transfusion- Dependent Beta Thalassemia. Mediterranian Journal of Nutrition and Metabolism, 6(1), pp. 45-51.
Modell, B. dan Darlison, M., 2008. Global Epidemiology of Haemoglobin Disorders and Derived Service Indicators. Bulletin of The World Health Organization, 86(6), pp. 417-96.
Moiz, B., Habib, A., Sawani, S. dan Raheem, A., et al., 2018. Anthropometric Measurements in Children Having Transfusion-Dependent Beta Thalassemia. Hematology (Amsterdam, Netherlands), 23(4), pp. 248-52.
Mukisi, A., 2019. Memahami Pentingnya Gizi Anak dalam Perspektif Islam. [Internet]
Available at: https://mukisi.com/2393/memahami-pentingnya-gizi-anak- dalam-perspektif-islam/ [Accessed 10 October 2020]
Muthi’ah, S., 2010. Gizi Menurut Al-Qur’an. Dalam Studi Al-Qur’an: Metode dan Konsep.. Yogyakarta: eLSAQ Press.
Muttaqin, Y., 2018. Anjuran Bersabar Bagi yang Sakit. [Internet]
Nu Online. Available at: https://islam.nu.or.id/post/read/85437/anjura n- bersabar-bagi-yang-sakit [Accessed 10 October 2020]
Noetzli, LJ., Panigrahy, A., Mittelman, S. D. dan Hyderi, A., et al., 2012. Pituitary Iron and Volume Predict Hypogonadism in Transfusional Iron Overload.
American Journal of Hematology, 87(2), pp. 167-71.
Pignatti, C. B. dan Galanello, R., 2014. Thalassemias and Related Disorders:
Quantitative Disorders of Hemoglobin Synthesis. In: J. Greer, D. A. Arber, B Glader dan AF List, et al. eds. Wintrobe's Hematology. 13th ed.
Philadelphia: Wolters Kluwer Health, pp. 861-913.
Prawirohartono, E. P., 2017. Pemantauan Pertumbuhan: Apakah Kita Tahu Bagaimana Menginterpretasi Indeks Antropometrik?. In: M. Mexitalia, I. Sidhiarta, Y.
Devaera dan L. C. Gultom, eds. Proceedings of The 1st of Pediatric Nutrition and Metabolic Update Nutrimet: "Best Practice in nutrition and
Metabolic disease in The First 1000 days of life". Jakarta: Ikatan Dokter Anak Indonesia, pp. 17-28.
Purba, R. E. J., Nency, Y. M. dan Farida, H., 2019. Faktor–Faktor yang Mempengaruhi Pertumbuhan Anak Penderita Talasemia Mayor di Jawa Tengah. Jurnal Kedokteran Diponegoro, 8(4), pp. 153-166.
Putri, A. S., 2019. Gambaran Status Nutrisi Anak Thalassemia, Surakarta: Universitas Muhammadiyah Surakarta.
Putri, D. M., Oenzil, F. dan Efrida, 2015. Gambaran Status Gizi Anak Talasemia β Mayor di RSUP Dr. M. Djamil Padang. Jurnal Kesehatan Andalas, 4(3), pp. 803-7.
Ragab, L., Hamdy, M., Shaheen, I. dan Yassin, R., 2013. Blood Transfusion Among Thalassemia Patients: A Single Egyptian Center Experience. Asian Journal of Transfusion Science, 7, 33-6.
Rathaur, V. K., Imran, A. dan Pathania, M., 2020. Growth pattern in thalassemic children and their correlation with serum ferritin. Journal of Family Medicine Primary Care, 9(2), pp. 1166-9.
Rejeki, D. S. S., Nurhayati, N., Supriyanto dan Kartikasari, E., 2012. Studi Epidemiologi Deskriptif Talasemia. Jurnal Kesehatan Masyarakat Nasional, 7(3), pp. 139-44.
Rujito, L., 2019. Buku Referensi Talasemia: Genetik dasar dan Pengelolaan Terkini.
Purwokerto: UNSOED Press.
Safitri, R., Ernawaty, J. dan Karim, D., 2015. Hubungan Kepatuhan Transfusi dan Konsumsi Kelasi Besi terhadap Pertumbuhan Anak dengan Thalasemia.
Jurnal Online Mahasiswa Universitas Riau, 2(2), pp. 1474-83.
Seggle, G. B., 1999. Anemia Hemolitik. In: R. E. Behrman, R. M. Kliegman, A. M.
Arvin dan A. S. Wahab, eds. Ilmu Kesehatan Anak Nelson. Jakarta: EGC, pp. 1709-12.
Shah, Farrukh T., Sayani, Farzana, Trompeter, Sara dan Drasar, E., et al., 2019.
Review: Challenges of blood transfusions in β-thalassemia. Blood Reviews, 37(100588).
Shihab, M., 2004. Membumikan Al-Qur’an: Fungsi dan Peran Wahyu dalam Kehidupan. Bandung: Mizan.
Sofro, A., 1995. Molecular pathology of β-Thalassemia in Indonesia.. Southeast Asian J. Trp. Med. Publ. Hlth, pp. 26,221.
Soliman, A. T., Khalafallah, H. dan Ashour, R., 2009. Growth and Factors Affecting It in Thalassemia Major. Hemoglobin by Informa Healthcare, 33(S1), pp.
S116-26.
Susilawati, D., 2018. Gizi Anak Dilihat dalam Perspektif Islam. [Internet]
Available at: https://republika.co.id/berita/dunia-islam/islam- nusantara/18/01/24/p31qdf335-gizi-anak-dilihat-dalam-perspektif-islam [Accessed 10 Oktober 2020]
Tari, K., Ardalan, P. V., Abbaszadehdibavar, M. dan Atashi, A., et al., 2018.
Thalassemia An Update: Molecular Basis, Clinical Features and Treatment. International Journal of Biomedicine and Public Health, 1(1), pp. 48-58.
Tjahjani, N. P., 2013. Kelainan Genetik Klasik: Tinjauan Penciptaan Manusia dalam Perspektif Al-Qur'an. Mudarrisa: Jurnal Kajian Pendidikan Islam, 5(2), pp. 222-50.
Trompter, S. dan Cohen, A., 2014. Blood Transfusion. In: M. D. Cappellini, Alan Cohen, John Porter dan Ali Taher, et al. eds. Guidelines for The Management of Transfusion Dependent Thalassaemia (TDT). 3rd ed.
s.l.:Thalassaemia International Federation (TIF), pp. 28-41.
Tsabit, F., 2013. Makanan Sehat dalam al-Qur’an: Kajian Tafsir bi al-‘Ilm dengan Pendekatan. Yogyakarta: Pustaka Ilmu.
Viprakasit, V., Origa, R. dan Fucharoen, S., 2014. Genetic Basis, Pathophysiology and Diagnosis. In: M. D. Cappellini, Alan Cohen, John Porter dan Ali Taher, et
al. eds. Guidelines for The Management of Transfusion Dependent Thalassemia (TDT). 3rd ed. s.l.:Thalassaemia International Federation, pp.
14-27.
Wahidiyat, I., 2003. Talasemia dan Permasalahannya di Indonesia. Sari Pediatri, 5(1), pp. 2-3.
Wahidiyat, I., Markum, A., Abdul Salam, M. dan Muslichan, S., 1978. Some Problems of Thalassemia in Jakarta. Pediatrica Indonesiana, 18, pp. 100-8.
Wahidiyat, P. A. dan Iskandar, S. D., 2018. Pentingnya Mempertahankan Kadar Hemoglobin Pra-Transfusi Tinggi pada Pasien Thalassemia Mayor.
eJournal Kedokteran Indonesia, 6(3), pp. 197-200.
Wahidiyat, P. A. dan Permono, B., 2018. Hemoglobinopati dan Talasemia. In: E.
Widiastuti, Y. M. Nency, Sri Mulatsih dan Bambang Sudarmanto, et al.
eds. Buku Ajar Hemato Onkologi Anak Edisi Revisi. Jakarta: Ikatan Dokter Anak Indonesia, pp. 64-84.
Weatherall, D. J., 2016. The Thalassemias: Disorder of globin syntesis. In: K.
Kaushansky, M. Lichtman, J. T. Prchal dan M. Levi, et al. eds. Williams Hematology. 9th ed. New York: McGraw-Hill Education, pp. 725-58.
Weatherall, D. J. dan Clegg, J. B., 2001. Historical Perspectives: The Many and Diverse Routes to Our Current Understanding of the Thalassaemias . In: D.
J. Weatherall dan J. B. Clegg, eds. The Thalassemia Syndromes. 4th ed.
Oxford: Oxford Backwell Science, pp. 1-61.
Weatherall, D. J. dan Olivieri, N. F., 2006. Thalassemias. In: R. J. Arceci, I. M. Hann dan O. P. Smith, eds. Pediatric Haematology. 3rd ed. Oxford: Backwell Publishing, pp. 281-301.
