Supplemental Digital Content 7
Patient and parent demographics comparing parents who responding to the 3-5 week Post- PICU Discharge Survey with those who did not respond to the 3-5 week Post-PICU
Discharge Survey.
Parent demographics comparing parents who responding to the 3-5 week post-PICU discharge survey with those who did not respond to the 3-5 week post-PICU discharge survey
Parent Variables
Parents who completed 3-5 week Post-PICU Discharge survey
Parents without completed 3-5 week Post-PICU
Discharge survey P Value Analyzed N=234 a Missing N=170 b
N(%) N(%)
Sex
Male 43 (18.4) 48 (28.2)
0.019 Female 191 (81.6) 122 (71.8)
Race
Asian 12 (5.1) 2 (1.2)
0.035 Black 39 (16.7) 40 (23.5)
White 148 (63.3) 92 (54.1) Other 29 (12.4) 30 (17.7) Missing 6 (2.6) 6 (3.5) Ethnicity
Not Hispanic or Latino 182 (78.8) 113 (66.5)
0.041 Hispanic or Latino 45 (19.2) 50 (29.4)
Missing 7 (3) 7 (4.1)
Education
Elementary School 5 (2.1) 3 (1.8)
<.0001 High School 61 (26.1) 73 (42.9)
College 91 (38.9) 65 (38.2) Post-Graduate 73 (31.2) 22 (12.9) Other Education 4 (1.7) 7 (4.1) Household Income
$25,000 or less 53 (22.7) 46 (27.1)
0.127
$25,000 - $49,000 33 (14.1) 28 (16.5)
$50,000 - $74,999 31 (13.3) 27 (15.9)
$75,000 - $99,000 32 (13.7) 14 (8.2)
$100,000 or more 71 (30.3) 38 (22.4)
Missing 14 (6) 17 (10)
Marital Status
Single 36 (15.4) 47 (27.7)
0.003 Married 168 (71.8) 87 (54.7)
Living with a partner 22 (9.4) 21 (12.4)
Separated/Divorced/Widowed 6 (2.6) 9 (5.3)
Missing 2 (0.9) 0
Is religion an important part of your daily life?
Yes 144 (61.5) 110 (64.7)
0.764 No 81 (34.6) 55 (32.4)
Missing 9 (3.9) 5 (2.9) Do you consider yourself a spiritual person?
Yes 187 (79.9) 130 (76.5)
0.441
No 42 (18) 38 (22.4)
Missing 5 (2.1) 2 (1.2) Mean (SD) Mean (SD)
Age 35.5 (7.8) 33.2 (8.4) 0.006
Resilience 76 (16.1) 78 (14.7) 0.203
Informational Social Support, T score 57.5 (8.3) 56.6 (9.3) 0.302
a Seven parents did not complete the survey at enrollment.
b Thirty-one parents did not complete the survey at enrollment.
Patient demographics and clinical characteristics comparing parents who responding to the 3-5 week post-PICU discharge survey with those who did not respond to the 3-5 week post-PICU discharge survey
Patient Variables
Patients with Parent- Completed 3-5 week Post-PICU Discharge survey
Patients without Parent- Completed 3-5 week Post-PICU Discharge
survey P Value
N=216 N=166
N(%) N(%)
Site
Site 1 173 (80.1) 121 (72.9)
0.098
Site 2 43 (19.9) 45 (27.1)
Sex
Male 118 (54.6) 90 (54.2)
0.936
Female 98 (45.4) 76 (45.8)
Indication for PICU admission
Acute respiratory illness 77 (35.6) 69 (41.6) 0.252
Acute septic illness 12 (5.6) 10 (6.0) 0.854
Acute neurological illness
(non trauma) 13 (6.0) 14 (8.4) 0.368
Trauma patient 4 (1.9) 6 (3.6) 0.288
Fluid/electrolyte issues 15 (6.9) 6 (3.6) 0.154
Post Operative Care 72 (33.3) 49 (29.5) 0.409
Ingestion 1 (0.5) 1 (0.6) 0.854
Elective Admission 2 (0.9) 1 (0.6) 0.717
Other 27 (12.5) 13 (7.8) 0.14
Health team member involvement The principle investigator
was involved 28 (13.4) 27 (15.3) 0.349
A Social Worker was
involved 140 (64.8) 112 (67.5) 0.531
A chaplain was involved 89 (41.2) 87 (52.4) 0.025
Pre-specified subgroups based on PICU outcomes
Patient died 5 (2.3) 12 (7.2) 0.054
Patient who had a serious
PICU eventa 9 (4.7) 12 (7.2)
Patient PICU LOS ≥ 12 days who did not have a serious PICU eventa
82 (38.0) 54 (32.5)
Patient PICU LOS < 12
days who did not have a 120 (55.6) 87 (52.4)
serious PICU eventa
Mean (SD) Mean (SD)
PIM2 raw score 3.4 (6.7) 4.9 (9.9) 0.091
Patient Age 4.9 (5.6) 4.5 (5.0) 0.434
PICU Length of Stay 16.0 (21.9) 20.4 (29.5) 0.11