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Supplemental Digital Content 7

Patient and parent demographics comparing parents who responding to the 3-5 week Post- PICU Discharge Survey with those who did not respond to the 3-5 week Post-PICU

Discharge Survey.

Parent demographics comparing parents who responding to the 3-5 week post-PICU discharge survey with those who did not respond to the 3-5 week post-PICU discharge survey

Parent Variables

Parents who completed 3-5 week Post-PICU Discharge survey

Parents without completed 3-5 week Post-PICU

Discharge survey P Value Analyzed N=234 a Missing N=170 b

N(%) N(%)

Sex

Male 43 (18.4) 48 (28.2)

0.019 Female 191 (81.6) 122 (71.8)

Race

Asian 12 (5.1) 2 (1.2)

0.035 Black 39 (16.7) 40 (23.5)

White 148 (63.3) 92 (54.1) Other 29 (12.4) 30 (17.7) Missing 6 (2.6) 6 (3.5) Ethnicity

Not Hispanic or Latino 182 (78.8) 113 (66.5)

0.041 Hispanic or Latino 45 (19.2) 50 (29.4)

Missing 7 (3) 7 (4.1)

Education

Elementary School 5 (2.1) 3 (1.8)

<.0001 High School 61 (26.1) 73 (42.9)

College 91 (38.9) 65 (38.2) Post-Graduate 73 (31.2) 22 (12.9) Other Education 4 (1.7) 7 (4.1) Household Income

$25,000 or less 53 (22.7) 46 (27.1)

0.127

$25,000 - $49,000 33 (14.1) 28 (16.5)

$50,000 - $74,999 31 (13.3) 27 (15.9)

$75,000 - $99,000 32 (13.7) 14 (8.2)

$100,000 or more 71 (30.3) 38 (22.4)

Missing 14 (6) 17 (10)

Marital Status

Single 36 (15.4) 47 (27.7)

0.003 Married 168 (71.8) 87 (54.7)

Living with a partner 22 (9.4) 21 (12.4)

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Separated/Divorced/Widowed 6 (2.6) 9 (5.3)

Missing 2 (0.9) 0

Is religion an important part of your daily life?

Yes 144 (61.5) 110 (64.7)

0.764 No 81 (34.6) 55 (32.4)

Missing 9 (3.9) 5 (2.9) Do you consider yourself a spiritual person?

Yes 187 (79.9) 130 (76.5)

0.441

No 42 (18) 38 (22.4)

Missing 5 (2.1) 2 (1.2) Mean (SD) Mean (SD)

Age 35.5 (7.8) 33.2 (8.4) 0.006

Resilience 76 (16.1) 78 (14.7) 0.203

Informational Social Support, T score 57.5 (8.3) 56.6 (9.3) 0.302

a Seven parents did not complete the survey at enrollment.

b Thirty-one parents did not complete the survey at enrollment.

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Patient demographics and clinical characteristics comparing parents who responding to the 3-5 week post-PICU discharge survey with those who did not respond to the 3-5 week post-PICU discharge survey

Patient Variables

Patients with Parent- Completed 3-5 week Post-PICU Discharge survey

Patients without Parent- Completed 3-5 week Post-PICU Discharge

survey P Value

N=216 N=166

N(%) N(%)

Site

Site 1 173 (80.1) 121 (72.9)

0.098

Site 2 43 (19.9) 45 (27.1)

Sex

Male 118 (54.6) 90 (54.2)

0.936

Female 98 (45.4) 76 (45.8)

Indication for PICU admission

Acute respiratory illness 77 (35.6) 69 (41.6) 0.252

Acute septic illness 12 (5.6) 10 (6.0) 0.854

Acute neurological illness

(non trauma) 13 (6.0) 14 (8.4) 0.368

Trauma patient 4 (1.9) 6 (3.6) 0.288

Fluid/electrolyte issues 15 (6.9) 6 (3.6) 0.154

Post Operative Care 72 (33.3) 49 (29.5) 0.409

Ingestion 1 (0.5) 1 (0.6) 0.854

Elective Admission 2 (0.9) 1 (0.6) 0.717

Other 27 (12.5) 13 (7.8) 0.14

Health team member involvement The principle investigator

was involved 28 (13.4) 27 (15.3) 0.349

A Social Worker was

involved 140 (64.8) 112 (67.5) 0.531

A chaplain was involved 89 (41.2) 87 (52.4) 0.025

Pre-specified subgroups based on PICU outcomes

Patient died 5 (2.3) 12 (7.2) 0.054

Patient who had a serious

PICU eventa 9 (4.7) 12 (7.2)

Patient PICU LOS ≥ 12 days who did not have a serious PICU eventa

82 (38.0) 54 (32.5)

Patient PICU LOS < 12

days who did not have a 120 (55.6) 87 (52.4)

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serious PICU eventa

Mean (SD) Mean (SD)

PIM2 raw score 3.4 (6.7) 4.9 (9.9) 0.091

Patient Age 4.9 (5.6) 4.5 (5.0) 0.434

PICU Length of Stay 16.0 (21.9) 20.4 (29.5) 0.11

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