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ERCP Patient Questionnaire

Version Date: 2/18/2019 Subject ID __ __ __ __

Today’s date (month/day/year): __ __ / __ __ / __ __ __ __

Month/Year of your last ERCP: __ __ / __ __ __ __ (mm/year)

Person completing form: ________________ Interviewee relationship to patient: ____________________

Instructions:

Questions in this questionnaire (unless specified) relate to the time since your child last underwent an ERCP.

We will refer to this period as the “FOLLOW UP” period. Please answer the questions as best as you can.

• If you are the parent/guardian or of a child under 18 years old who is being invited to be in this study, the word

“you” in this document refers to your child.

• If you are a teenager who is being invited to be in this study, the word “you” in this document refers to you.

• If you are the legally authorized representative of a person who is being invited to be in this study, the word

“you” in this document refers to the person you represent.

1.1 During the FOLLOW UP period, have you ever admitted to the hospital (overnight or longer) for an attack of pancreatitis?

 Yes  No 

Number of times since your last ERCP procedure: __________Date(s) _______________________

Number of times in your whole life: _____________ Date(s) _______________________

1.2 During the FOLLOW UP period, have you had an episode that you suspect was pancreatitis but you managed this at home, without a hospital admission?

 Yes  No 

Number of times since your last ERCP procedure: __________Date(s) _______________________

Number of times in your whole life: _____________ Date(s) _______________________

IMPORTANT: Please DO NOT provide information on pain other than from pancreatitis.

2.1 Have you had pancreas abdominal pain since your last ERCP procedure?

 Yes  No

If ‘yes’, is the pain more or less frequent than before the ERCP intervention(s)?

Is the pain more or less severe than before the ERCP intervention(s)?

2.2 Have you experienced any of the following symptoms during the FOLLOW UP period?

vomiting How many episodes since your last ERCP procedure? ___________

diarrhea How many episodes since your last ERCP procedure? ___________

weight loss How much have you lost since your last ERCP procedure? _______________

Has there been a gain back of some of the weight loss? _______________

Page 1 of 2

1. Pancreatitis

2. Pain and Disability

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Pediatric Follow-Up Patient Questionnaire CPDPC16-03

Version Date: 12/30/2016 Subject ID __ __ __ __ __ Subject Initials __ __ __

2.3 Do you overall feel that your pancreas symptoms are resolved/better/worse/unchanged since your last ERCP procedure?

 resolve  better  worse  unchanged

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