1 Supplemental Table 1. Structure-Process Clinic Survey
How many hospitals are in your health system?
When was the follow-up clinic started?
Which patients do you invite to attend the follow-up clinic?
All patients admitted to ICU
Respiratory failure requiring mechanical ventilation Sepsis or shock
Delirium ECMO Trach of PEG Physician referral COVID-19 (ICU stay)
COVID-19 (hospitalized without ICU)
COVID-19 (all care levels, e.g., not hospitalized) Other
How are patients referred to follow-up clinic services Referral at ICU discharge
Referral at hospital discharge Outpatient referral via primary care Outpatient referral via specialist Self-referral via social media
Self-referral (e.g., patient searches internet) Other
When does the first follow-up visit occur?
On average, how many follow-up patients are seen in a typical day?
How many days per month does the follow-up clinic operate?
Are follow-up clinic services telehealth enabled?
Comments on follow-up clinic logistics
On average, how many hours per day does the follow-up clinic operate?
What is the average duration of a patient’s visit to the follow-up clinic?
On average, how many visits does a patient make to the follow-up clinic?
How is the follow-up clinic funded?
Clinical billing
Volunteer staff support Institutional space Institutional staff support Foundation/gift
Grant funding (e.g., federal, state government) Unknown
Other
What professions are involved in the follow-up clinic?
Does your organization provide peer support services
2
What recovery assessments and/or services are available during follow-up clinic visits?
What functional/physical recovery assessments and/or services are available during follow-up clinic visits?
What psychological and/or cognitive assessments and/or services are available during follow-up clinic visits?
Do you use tools/scales to determine a patient’s recovery specific to Physical recovery
Psychological recovery Cognitive recovery
Quality of life and/or care coordination
Specific Measures Physical Recovery
Exercise tolerance: 6 Minute Walk Test (6MWT) Strength: Dynamometry
Mobility Gait Speed
Timed Sit and Stand
Activities of Daily Living/Instrumental Activities of Daily Living Katz
Lawson Frailty
Clinical Frailty Scale (CFS) Fried Frailty Phenotype
Disability assessment: World Health Organization Disability Assessment Schedule Pulmonary
Borg scale
Medical Research Council breathlessness Spirometry
Pulmonary Function Test Sleep
Insomnia Severity Index (ISS)
Pittsburgh Sleep Quality Index (PSQI) Brief Pain Inventory
Nutrition
Subjective Global Assessment Form
Malnutrition Universal Screening Tool (MUST) Medication
Medication Access and Adherence Tool (MAAT) Direct pharmacist review
Psychological Recovery
Hospital Anxiety and Depression Scale (HADS) Patient Health Questionnaire-9 (PHQ-9)
Becks Depression Inventory
General Anxiety Disorder-7 (GAD-7)
3 Impact of Events (IES-R)
Posttraumatic Stress Symptoms-14 (PTSS-14) Posttraumatic Stress Disorder Checklist-5 (PCL-5) Trauma Screening Questionnaire
Civilian PTSD Inventory Cognitive Recovery
Anticholinergic Cognitive Burden Scale Mini Mental Status Examination (MMSE)
Montreal Cognitive Assessment (MoCA/MoCA-Blind) Addenbrooke’s Cognitive Examination (ACE-III or ACE-R)
Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Modified Telephonic Interview for Cognitive Status
Executive Function Trails A and B Clock Drawing Tower Test
Repeatable Battery for the Assessment of Neuropsychological Status (RBANS) Quality of Life
European Quality of Life Group 5 Dimensions (EQ-5D) Short Form 36 (SF-36)
The World Organization Quality of Life (WHOQOL-BREF)
Palliative Care: Physical Emotive Autonomy Communication Economic and Transcendent (PEACE tool) Caregiver Assessments
Zarit Burden Interview Care Strain Index HADS for Caregiver
Please add additional comments about follow-up clinics
