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Knowledge level and education needs of thalassemic childern's parents of Kerman city
Ghazanfari Z.* MSc, Arab M.1 MSc, Forouzi M.2 MSc, Pouraboli B.3 MSc
٭“Physiology Research Center” & “Razi Faculty of Nurisng & Midwifery”, Kerman University of Medical Sciences, Kerman, Iran
1Accidents & Incidents Research Center, Kerman University of Medical Sciences, Kerman, Iran
2Neurosciences Research Center, Kerman University of Medical Sciences, Kerman, Iran
3Razi Faculty of Nurisng & Midwifery, Kerman University of Medical Sciences, Kerman, Iran Abstract
Amis: Tallasemic population is mainly young; therefore, family plays a very important role in providing care for
them. Considering the chronic nature of thalassemia, it is necessary for patients and their families to have addequate information on the disease proccess and related therapeutic measurements. This study was performed to determine the knowledge level and educationl needs of thalassemic patients’ parents.
Methods: This descriptive study was performed on 300 thalassemic patients’ parents who reffered to Kerman
special diseases center in year 1384. Data was collected based on a researcher-made questionnaire by interviewing with parents and was analyzed by SPSS 15 using frequency table, ANOVA, student T tests and Spearman correlation coefficient.
Results: The mean age of fathers was 42.02±9 years and for mothers it was 35.9±8.4 years. The mean score
range of 20 items in need questionnaire was between 2.79 and 2.96 (from the maximum score of 4). Parents’
knowledge was under 50% considering all items and they gained 37% of the total score. There was a positie correlation between parents’ level of education and knowledge as well as their educational needs. Mothers’
educational needs were more than that of fathers.
Conclusion: Thalassemic patients’ parents don’t have adequate information on the disease and need a high level
of education.
Keywords: Knowledge, Parents Education Need ,Thalassemia
Vol. 3, No. 3, Fall 2010
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.
1- Pakbaz Z. Treatment of thalassemia. Tehran: Dastan Publication; 1959. [Persian]
2- Fergus N. An overview of thalassemia for parents adopting internationally. Int Health Med. 2002;5(1):11-5. Available from:
www.comeunity.com/adoption/health/thalassemia.html.2002 3- Wisconsin L. Hematology and blood disorders. Beta thalassemia. Qundersen Lutheran Medical Center. Available from: www.newsex.com/newsletters/Biotech -week/2005-06- 29.html-32
4- Bateman N. Thalassemia: March of dimes. Available from:
www.maimanidemed.org/blank.cfm
5- Cooley S. Anemia foundation. About thalassemia: What is thalassemia? Available from: www.cooleysanemia.org 6- Salmah F. The effect of education in knowledge and attitude in student about thalassemia disease and prevent thalassemia.
Mazandern Univ Med Sci J. 1996;6(13):10-3. [Persian]
7- Arab M, Abaszadeh A. The effect of a thalassemia educational program on students’ knowledge. Qazvin Univ Med Sci J. 2002;22(3):43-47. [Persian]
8- Azarkavan A. Psychosocial chronic thalassemia in adolescent. Iran Thalassemia J. 1997;11:56-60. [Persian]
9- Galanz C, Louis F, Reimer B. Health behavior and health education. Shafei F, translator. Tehran: Khoshbin Publication;
2000. [Persian]
10- Fathi Vajgar K. Educational needs assessment: Models of techniques. Tehran: Abij Publication; 2002. [Persian]
11- Pakbaz Z, Treadwell M, Yamashita R, Quiyolo K, Foote D, Quill L. Quality of life in patients with thalassemia intermediary compared to thalassemia major. New York:
Academy of Sciences; 2005.
12- Alisafat Madadi S. The study education needs children’s parents with thalassemia. J Nurs. 2001;43:9-13. [Persian]
13- Naghili B. The study of knowledge and practice children's parents with 5-15 years about romathoid fever. Nabz J.
1996;5:10-3. [Persian]
14- Ghazanfari Z, Mohammad Alizadeh S, Khosravi F. Coping method of the parents with the disease of their thalassemic children. Hormozgan Univ Med Sci J. 2004;4(7):197-202.
[Persian]
15- Brunner L, Suddarth S. Text book of medical: Surgical nursing. Philadelphia: JB Company; 2008.
16- Phipps S. Medical surgical nursing. Philadelphia: Mosby;
2008.
17- Appleyard ME, Gavaghan SR, Gonzalez C, Ananian L, Tyrell R, Carroll DL. Nurse coached intervention for the families of patients in critical care units. Crit Care Nurs.
2000;20(3):40-8.
18- Astedt-Kurki P, Lehti K, Paunonen M, Paavilainen E.
Family member as a hospital patient: Sentiments and functioning of the family. Int J Nurs Pract. 2005;5(3):155-63.
19- Holden J, Harrison L, Johnson M. Families, nurses and intensive care patients: A review of the literature. J Clin Nurs.
2002;11(2):140-8.
20- Astedt-Kurki P, Paunonen M, Lehti K. Family members' experiences of their role in a hospital: A pilot study. J Adv Nurs. 2004;25(5):908-14.
21- Attree M. Patients' and relatives' experiences and perspectives of 'Good' and 'Not so Good' quality care. J Adv Nurs. 2001;33(4):456-66.
22- Mary RL. Determination and quantification of content validity. Nurs Res. 1986;35(6):13-9.
23- Hajian KO. Attitude and knowledge of couple about thalassemia at the stage of marriage in Babol. Gilan Univ Med Sci J. 2000;34(9):103-10. [Persian]
24- Naseri Tosi M. Status of yang and children with thalassemia major in Iran. Iran Thalassemia J. 1997;12:26-49.
[Persian]
25- Rachndran L, Darmalingam T. Health education. Shafei F, Azar A, translators. Tehran: Tehran University Publication;
1991. [Persian]
26- Khin E, Aung MH, Thein T. Knowledge, attitude and practice in relation to thalassemia. Southeast Asian J Trop Med Public Health. 2003;23(2):269-72.
27- Politis C, Richardson C, Frantopoulos JG. Public knowledge of thalassemic patients. Greece: National Center of Social Research; 2002.