UNCRPD United Nations Convention on the Rights of Persons with Disabilities UNCRC UN Convention on the Rights of the Child. Jonathan Jansen's comments and advance my need to better understand the current state of children's places and spaces of learning.
Rationale for my study
A broader construct
While this study is primarily focused on my experiences of access for my daughter with DS, the 'self' does not exist. This study shows how I have reconciled the personal and academic components as it has evolved over time.
Key research question
Structure of the thesis
Discussion of some highlighted findings is contextualized. The analysis process is explained and the meaning is expanded. The thesis culminates with the spiritual anchoring, a return on my part to God's Word and how that stop-over helps to release the stone in my shoe. Chapter 7 ends with summary thoughts on the subject of access to school spaces for my child with DS.
The genesis and axis of schooling
In other words, Conrad (2004) shows that the “medicalization” of deviance that describes a shift from the norm affects approach. Foucault perceives power as productive and negative; and in a brief comment on space as power he writes "the vertical is not one of the dimensions of space, it is the dimension of power", which in its application to this study, can be viewed this way: the government is located in a position of power by making policy and waiting for it to be implemented.
Unlatching access
Foucault suggests that this can be reversed: “inside out” (Crampton & Elden, 2007, p. 8). The most memorable quote for me on this subject is “recognizing that ethics requires us to risk ourselves in its very moments. Lave and Wenger (1991) criticize the association of the 'situation' of learning with a 'simple location in space and time' in their model of learning as 'legitimate peripheral participation' in a 'community of practice', these theorists consider their views on the situation. learning involves a much more multidimensional and relational perspective in which "agent, activity, and world mutually constitute each other" (pp. 32-33).
Evolution of interpretations of disability
Harlan Hahn expresses a similar sentiment, from a North American context: "the failure of a structured social environment to adapt to the needs and aspirations of citizens. With this perspective at hand, I was not surprised to find a to encounter echoes of this interpretation of disability when reading an article by Finkelstein (2001) entitled “The Social Model of.
A world of peculiarities
Etiology of Down syndrome
Over 23 chromosomes from each parent, CWDS has an extra (Figure 1). Davies explains that DS is a chromosomal disorder where there is no manipulation of genes, but rather, it is fixed before conception.
Prevalence of Down syndrome disability
Globally, it is estimated by Down Syndrome Education International (DSEI) that 220,000 babies are born with DS every year.9 There are currently an estimated 12,800 people born with DS under the age of eighteen in the UK. Access to the Down Syndrome South Africa (DSSA) national website indicates that the incidence of DS has been steadily increasing since 1979.
International discourses in schooling children with Down syndrome
Buckley and Bird (2000) have noted the gradual progression of children with DS in the UK to inclusive settings. Riddel (2009) comments on extensive research with DS children in the UK by Sue Buckley, where.
South African discourses in schooling children with Down syndrome
These labels, and the stereotypical perspective associated with them, contribute to the expansion of the deficit model. One of the principles of the White Paper on Education 6 was aimed at addressing gaps of inequality and inaccessibility in education.
Reviewing the legislative framework
Research conducted by Porter (2004), Gordon (2010), Holsinger and Jacob (2009) and Graves (2012) indicates that inclusive education is beneficial for children with DS, confirming that the benefits outweigh the challenges. The study results of Ashima (2010) show support for inclusive education through adaptation, with a physical support structure to improve mobility and accessibility for children with different physical needs by installing lifts and ensuring toilet accessibility.
Access, its place and spatial consideration together with legislative framework
I now embark on the adventure of accessibility and leave Thomas and Loxley's (2007, p. 1) argument that thinking about inclusion and inclusive education, which has expanded into new areas, is sometimes so overused that it loses meaning, the determine the course of the discussion. May (2004, p. 70) believes that this is “critical to issues of access [because] if participation is conditional, then access to the community will also be conditional”.
Autoethnography: offering a voice
The UN Convention on the Rights of the Child (CRC) has formally recognized in international law that children are the subjects of rights, and not merely beneficiaries of the defense of adults (Lansdown, 2001). I was confident that this method would allow me to integrate my views, thoughts, and story as a valid part of the research (Denzin, 1989; Reed-Danahay, 1997).
In conclusion
I detailed the prevalence of DS both within and outside South Africa to indicate the increasing number of live births from DS and identified the gap in service provision to meet this growing demand due to unreliable data on the prevalence of DS condition nationally and internationally. I then provided an overview of the national imperatives arising from policies and current practices that are sometimes disjointed. The concluding comments offer insights to build an understanding of the transformations expected.
Introduction
We also know there are unknowns; that is, we know there are certain things we do not know. I will refer to Donald Rumsfeld's homily mainly to flag salient issues arising from this lecture and to discuss its epistemological importance within the context of this study.
My knowing
Spiritual learning
By emphasizing my quest for spiritual upliftment, I have focused solely on finding answers and healing for my unwanted situation. To increase my faith, I surrounded myself with God's word, making repeated reading and recitation a ritual.
Maternal instinct
The passage that stuck to me was “For verily I say unto you, that whosoever shall say unto this mountain, Be thou removed, and cast into the sea; and shall not doubt in his heart, but shall believe that the things which he saith shall come to pass; he will have whatever he says" (Mark 11:23). I wanted her to be like a withered tree that I could topple if I had enough faith.
Situated coordination
Creative realm
I tried to design tasks with pictures and then words, believing that she is a visual learner, and the use of pictures, different images, attention to colors and other visual media to help her learn. We incorporated fine and gross motor coordination, developed through skills to color within the lines, write patterns to help hand-eye coordination, physical.
Theoretical and medical meaning
Virtual space
Epistemic communities
Academic whirlpool
Most schools focused on skills: baking (where all the ingredients are measured and the sequence is almost complete for the students). She referred to how the child's father responded to the birth.
In conclusion
Arriving at the intimacies of my world
Another qualitative ethnographic study of the college experience of an individual with Down syndrome was conducted at a Jesuit university in the US Midwest by Hamill (2003). The 'what' phenomenon of my study was 'access', 'school spaces' and 'Down syndrome'.
Methodology of autoethnography
- The act of remembering
- Accessing the field of data
- Issue of ethics: Possibilities
- Assembling the moral maze
- Ethical consideration
- The core values
- How I protect confidentiality
I could not repeat the exactness of place, word, gesture of the narrative in my study. The need for research, data and strategic plans was underlined in "the Report of the Commission on the Status of People with Disabilities". 1996), and in the "United Nations, Convention on the Rights of Persons with Disabilities".
Key informants
Writing in the first person, becoming the object of research, and breaking away from the conventional separation of researcher from subject positions this study as. This study is inextricably linked to a community of other parents of children with DS that is part of the motivation for this sample.
Organising data
Much of the trauma of the journey of access to school facilities has been suffered by parents who have had similar experiences to me and have created knowledge that can be considered emotional from their subjective experiences and have not shared until now. These four episodic chronicles of informants will be combined into a single discussion, albeit with different topics.
In conclusion
Naming the chronicles
- Chronicle 1: ‘Ten fingers, ten toes’
- Chronicle 2: Tracking the milestone
- Chronicle 3: Lend a hand, lend a book
- Chronicle 4: Going ‘down- under’
- Chronicle 5: If the shoe fits
- Chronicle 6: The beginning, the end
- Chronicle 7: Whose choice is it anyway?
- Chronicle 8: Exclusion in inclusion
The answer from two of the schools is an empathetic "No!" The third school asked for a contact meeting with us. I assumed it was because most of the students lived in the school dormitory and it would be difficult to monitor aftercare surveillance.
Your turn
Structure of analysis: assigning meaning
I rely on parents to understand the social and historical context and first hand. In this case, the last born after thirteen years was the third child.
Snapshots of informants 143
- Carol Williams: Criss- cross, living on both sides
- Joy Nxumalo: Crossing the road, carrying the cross
- Estelle Adams: Cross it out, and get in
Children’s geographies
- The concept of children’s geographies
- Analysis process
- My knowing 156
- Barriers to learning 161
- Inclusion versus exclusion
- Ecology of space
- Post schooling
The characteristic of the nursing staff withholding information, as if it were a secret. When she was informed of the diagnosis, her lack of medical understanding of the condition did not matter much.
Enabling or disenabling access
It is with their peers, in schools, playgrounds, streets and places of worship, that they can become part of the local community and cultural life and part of the reconstruction and development of our country. The synthesis of the discussion of access to school spaces for CWDS thus far is represented in an adaptation of Urie Bronfenbrenner's Ecological Systems Theory.
In conclusion
Albert Einstein's words, "I don't know how man will fight World War III, but I know how they will fight World War IV with sticks and stones43" is a preemptive warning that we are in a state of regression regardless the era in which we live. We have a good story to tell” highlighted select aspects of development that accorded credit to his administration.
Measure of access
We have increased our number of literate adults through the Kha Ri Gude program from 2.2 million in 2008 to 3 million people; We have also invested in teacher training and are reopening teacher training colleges to meet demand; To create a decent learning environment, we have completed 370 new schools across the country to replace mud schools and other unsuitable structures.
Advocacy for access
Aligning political will with paradigm shift
Conceptual lens consideration
Re-imaging schooling, reducing deviancy
Alleviate rather than perpetuate
In summary
Closing thoughts
